Help Raven win their battle

This is my last resort, I am a single mum of three, my name's Samantha,

Raven is 18 and loves art, tattoos and is an absolute animal lover.

Raven has a very rare condition (suspected SMA) superior mesenteric artery syndrome, 33% of people with this condition lose their battle. Ravens condition is creating constant pain nausea vomiting and weight loss (22 kg in 12 months) Due to The difficulty in finding a diagnosis in the public system (6yrs) I am desperately wanting them to be seen by a private gastroenterologist clinic in Auckland. In the meantime while there is no definite diagnosis my child continues to loose weight and is in more severe pain and nausea resulting in 2 hospital stays in 2 months this year.

With no treatment other than pain meds as all nausea medication appears ineffective. My fear is that unless I am able to access a private specialist my child’s condition may progress to where they’re not able to be helped. Last week, in 1 week even with great effort from Raven they lost 2kg, they’re 5.7 ft and 49 kg. I have found a private nutritionist and have started Raven on a high protein and whole foods diet in a hope to slow the weight loss while we wait. Any help at all from anyone would be more than appreciated, I see it as you saving my beautiful, strong and courageous child. They need all and any support you could give big or small ❤️God bless all