CAST AWAY
12 February 20227 weeks later and it’s off still bruised and very restricted movement in elbow so phys apps 😟 . Summer is so happy it’s off was 🥵 #SUCHATROOPERPRINCESS
7 weeks later and it’s off still bruised and very restricted movement in elbow so phys apps 😟 . Summer is so happy it’s off was 🥵 #SUCHATROOPERPRINCESS
But then on Boxing Day 😔🤦🏻
At least she’s doing what kids do best…being just that a kid lol already wants to get back on cause that’s my girl 😍
Summers new little man 😍
She’s so in love with him 💕
So cute! What's his name?
This is Mickey Deb 😎 he is 1.3kgs and is fully grown he’s just the man! And is Summers best mate already
Finding out yesterday that Our Princess is the only person ever in New Zealand to have Battens and out of the Three types she has the worst and only one that has no treatment whatsoever…one in over five million rarity so Starship has wiped their hands of it because they can do absolutely nothing for her (their words) so passed it off to Waikato and they can only treat symptoms as they come and they are coming faster than we and her amazing pediatric neurologist at Waikato Hospital thought or hoped 😭.
THE HARDEST THING WE COULD EVER GO THROUGH HAS US WONDERING IF WE ARE..CAN BE STRONG ENOUGH! We promise you our baby we will never be absent from your side and will never stop fighting and never ever give up hope we love you so very much baby girl 😭😭😭😭😭♥️♥️♥️
Firstly we would love to thank you Rebecca for all of your support through this and doing things like this to help our baby smile…THANKYOU SO VERY MUCH ♥️!
To everyone who have donated so far Summers mum and I are so touched and thankful for all of your kindness and generous donations we have no words to describe how it feels that you all are helping put a smile on our princesses face again ♥️. Unfortunately due to COVID and being in lockdown in Waikato we have been limited so far as to what we can do (grrr Covid) Summer did manage to get her 8th birthday party 2 months late as was in hospital in September for her birthday … it was a magical day to say the least and she was just so happy to have a a princess turn up and all of her friends and family that could come from the level 3.2 area it was such an amazing setup and she has been buzzing ever since!. As soon as we’re aloud we have so many fun things planned that she’s always wanted to do and the list is still growing so here’s to making memories and we truly thank you all from the bottom of our hearts 💕 wouldn’t be possible with all the help 🙏🙏
Hi everyone, An update from Summer's parents, they are so incredibly grateful to everyone and want to say thank you so much, they also want to let people know that Summer doesn't know the extent of her illness she just knows that she is sick so for anyone that knows Summer or their children are friends with Summer can they please not mention the details of the disease to her please, Thank you so much again xxx
$1,245 on the first day, wow!!, I just wanted to say the hugest thank you to everyone that has donated already, the amazing experiences Summer will be able to have because of your generosity will just be incredible, You are all absolutely amazing xxxx