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Help Tama fight SMA

  • Help Tama fight SMA

      21 June 2020
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    We need your help now more then ever! With the new budget announcement, pharmac are still not budging with the funding for Spinraza. Tama is 4 in July and we would like to create some memories and a birthday bash for him we will never forget.

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  • Help Tama fight SMA

      1 November 2019
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    Tama is 3years old and has been diagnosed with SMA (spinal muscular atrophy). This disease affects his ability to walk due to muscle wasting ending in a wheelchair. Treatment for his disease isn't available in NZ due to the high costs, but is available in other countries.

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