Where We Are Now
3 September 2026Right now, our family is in limbo, waiting for the New Zealand health system to accept responsibility for funding Callie’s surgery. We have started speaking with the surgical team at Westmead Hospital in Sydney and have been told it could be another 5–6 months before everything is in place.
In the meantime, the financial pressure on our family is becoming increasingly difficult. Callie’s illness continues to mean time away from work, unpaid leave, travel to medical appointments, medication and the many unexpected costs that come with caring for a child with a complex, chronic illness.
Once her surgery is approved and scheduled, we will need to spend time in Sydney supporting Callie through the operation and a long recovery. This will bring additional costs for travel, accommodation, food and time away from work.
We are not asking for donations to fund Callie’s surgery. We are asking for help easing the financial burden on our family while we wait for her operation and support her through recovery.
Every donation, no matter how small, will give us some financial breathing room so we can focus on what matters most — being there for Callie.
After four years of pain, uncertainty and countless hospital visits, we simply want our daughter to have the chance to live her life without constantly fearing the next flare-up.
Thank you for reading Callie’s story. Whether you donate, share her page, or keep Callie in your thoughts, your support means more than we can put into words.