Help With Rhiannon’s Medical Bills
My friend Rhiannon needs support for medical care while suffering severe ME/CFS
Wellington
UPDATE: Rhiannon has found this a huge help and been able to find some very specific areas of support needed. Its been determined that she has been negatively affected by mycotoxins and so future funding will go to:
1) ERMI testing (a type of DNA-based testing that uses Environmental Relative Moldiness Index (ERMI) values to identify mold levels in a given area.) (approx. $1,265)
2) Remediation.
3) Upgrade ventilation system to prevent environment re-growing mold. (approx. $8,000)
4) Treatment protocol to try clear biotoxins and imbalances in her system.
My super awesome pal Rhiannon has been bedridden for well over a year with severe myalgic encephalomyelitis. She developed this when she was 11 and spent years on and off bedridden but always recovered to the point where she could slowly achieve things but with physical consequences. However now she is severely affected to the point where all she can do is play on her phone. It affects every aspect of her health and life and makes her extremely susceptible to outside illnesses meaning she can’t go to hospital due to risk and needs private doctor care and extra finances to get things like medical supplies, supplements and if the house itself is contributing (harmful molds) potentially looking at renovations. Literally any little bit will help out and mean that we can see our friend again.
Euan Towns-Lindroos' involvement (page creator)
Rhiannon is a dear friend of mine and currently due to the nature of illness we cannot visit or help physically so our friends want to set up a way to help remotely.
Use of funds
The main focus is to get extra support for a health watch, private doctor visits as there are no specialists available, potential adjustments to house and living, and ongoing medicine costs. Funds will be paid to Rhiannon's brother Jordan Ansell.
Latest update
Rhi’s updated specific needs! 3 November 2024
Rhi has provided a detailed list of items and supports she needs and we are extending the page to accommodate this. Here’s the specific costs:
Purchases lately outside of my income and what my limited income goes on: I get $500 pw to cover
-Supplements (each one ranges from $25-$400+ per supplement)
- skin/hygiene stuff like baby wipes & sanitising spray.
-Medical supplies (I.e Panadol ibuprofen, ketotifen $200 for 200 pills, each script cost and $1K for 3 months of ivabradine)
-Snacks, milk, stuff for drinks (I only have a few foods I can eat and most is hospital covered but the hospital just give me eggs, fish, rice and pumpkin everyday)
-Electrolytes
-The occasional one off take away meal
-VPN I’m getting hacked in hospital daily lol $20 pm
-Phone bill too $20 pm
- Netflix (unless someone wants to add me to their one for cheaper & any other service 🥹)
- Spotify
Need:
- Silk pillowcases my old ones are dying
- New pillows
- Ongoing support to access medications and supplements & other essential items
- Massage, osteo etc
- Air filter (400+100 shipping)
- Water filter
Funds also going towards script reassessment and renewal for THC
Lumbrokinase: $250 for 90
Magnesium
Fibromalic
MitoQ- $70-80 per bottle, x4 per day
R lipolic acid
BPC157 - $150
MTQ10
DAO enzymes $150-170 pm
Glutathione $150 pm
Bromelian and quecertin $70pm
Luteolin: 100-150
Prodome glia - can't afford right now
Milk thistle
Nettle leaf
Minerals
Biotin
L carnatine
Probitoics - ultra flora - $70
Reuteri $30-40
B12
PEA
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