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Please help Xavier smile again

  • 19/12/2017 - Update

      19 December 2017
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    Kia Ora Friends & whanau,

    With Xmas upon us on behalf of Xavier & our whanau we would like to wish you all a very Merry Xmas & Blessings for the New Year.....xox

    It's been nearly 6 months since Xavier Contracted Guillain Barre Syndrome.

    On Friday we were allowed to come home including Xavier for Xmas for a 3 week break returning to Rehab on the North Shore January 8th 2018.

    He has made significant progress as you can see in the photos. He is able to stand for a period of time and can free walk/wooble for a certain time & distance. Officially he is on crutches & in his wheelchair for distances & supervised for free walking. At home he will continue with exercises everyday to help maintain muscle strength & conditioning. To his credit he's always been super keen to keep moving & just get on with it!❤ Throughout this time Martine & Aunty Marj have had a rotating 1 week on sometimes 2 weeks on roster & your generosity has allowed them to help do this & be with him during this whole ordeal.

    To you all our sincerest heartfelt thanks Merry Xmas....❤❤❤ Nga mihi arohatinonui....xox

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  • 10/11/17 - update

      10 November 2017
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    Kiaora Whanau and Friends,

    Xavier along with his Mum and Nan have been at the Wilson Rehabilitation Center on the North Shore coming up 6 weeks.

    Xavier has been very motivated since he started rehab & is working really hard.

    He loves all the therapy sessions as they all involve games in order to capture the children's attention & maintain participation.

    Last week he stood & was walking with a frame & harness, a tearful but joyous moment!!

    He has his own wheelchair now & is able to wheel himself around.

    Along with Xavier’s therapy sessions he has also started school at the center where he attends for 1 1/2 hours per day.

    Xavier is making small improvements everyday and can not wait to be back home with his family and friends.

    Once again, many thanks to everyone who have supported us through Xavier’s journey, we are deeply grateful to you all.

    Arohanui X

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  • 01/10/17 - Update

      1 October 2017
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    Kiaora Whanau and friends,

    A lot has happened in Xaviers world over the last couple of weeks.

    From Intensive Care he moved to the High Dependency Unit & then to the Neurological Ward.

    He has had his Tracheotomy removed finally & most of the other medical lines.

    He has movement in both arms & fingers and can twitch his knees. He still has hypersensitivity & pain with movements & is on a dozen plus medications per day.

    Next week we are moving to the Wilson Rehabilitation Center on the North Shore where he will start a comprehensive program of physiotherapy.

    Dr's have stated a time frame of 3 to 4 months to be home and fully recovered which obviously is all dependent on Xavier and how he copes with Physio

    Xavier's goals:

    Walk again

    Throw a rugby ball

    Hold a pen and write

    Be home before Xmas!

    Thank you all for your continued support for our boy X

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  • 16/09/17 - Update

      16 September 2017

    Kiaora Whanau and Friends,

    Just a short update on Xaviers progress thus far.

    Xavier has been transferred from PICU (paediatric intensive care unit) to HDU (High dependancy unit) in the Neurology ward which is a positive move.

    Over the last week Xavier has gained limited movement in both arms, is now able to eat solid food and regained his voice which often means bossing his Mother, Nan and nurses around 😜

    Xavier is currently still using a Tracheotomy to assist with breathing and is receiving daily physio to strengthen his muscles 💪🏽 and regain controlled and voluntary movement.

    Xavier's Whanau has been extremely humbled by all of the loving messages of support, kind gestures and generous koha received from Whanau, Friends and the wider community.

    Arohanui 😘

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