Hi all, I know it has been a while with an update:
It is full on with physio every day, even though we don't do much, the days go so fast, and before we know it, it is dinner time and bed routine.
Last week I had a talk with the oncologist, and said that I would like to try B12 injections. The oncologist didn't hesitate at all, and checked with the pharmacist for any reactions and there are none with the Chemo drugs. She also said they will prescribe and give them to him. So this brought me some relief as my gut instincts were telling me we needed to try it. So now Huntar receives x3 B12 injections in his thigh, 3 times a week at 300mgs. This is equivalent to someone who could not absorb any B12.
The next round of chemo starts tomorrow. They call this round M3. It would usually be known as M1 (Maintenance 1) but as we can no longer have all the drugs it has been renamed.
This afternoon Huntar went under a general anesthetic for a catheter, as there are problems with his bladder senses, this is related to the nerve damage and he does not empty his bladder completely. This means that there is residue left, and this is not ideal as, with chemo, they use hydration to flush the body from the chemo so the drugs are not sitting in the kidneys or bladder. So having the catheter will allow an empty bladder and lower risk of bladder infection.
We are still looking at 2 and half months before coming home.
Rick, Kane, Huntar and myself all managed to stay together over the past weekend at Ronald McDonald House. It was an awesome feeling to say the least. Last night, however, we had to bring Huntar back to the hospital as his temperature was over 38.5C, so he's back on antibiotics and bloods were taken. These tests have confirmed he has an infection and so is back in isolation.
Sadly, it was at Ronald house where this infection has come from and this brings to light the importance of being free from illness when anyone is visiting. This is especially important for the Cancer kids staying there as it is terrible for them with little to no immunity.
For those in the Upper Hutt and Lower Hutt, The Cossie Club Upper Hutt Quiz night fundraiser is approaching, September 3rd, to be exact, and we are hoping local businesses would be willing to donate items or vouchers for service or products for this event as prizes.Your company will be announced by the MC through the night as well as business logo on prize tables.
For Upper Hutt people, this is my home town and I have supported business myself through the years. Lower Hutt is where I grew up and spent a large portion of my life.
So if you WORK somewhere in Lower Hutt or Upper Hutt, maybe ask your boss? If you ARE a boss, please think about this. If you are out of the region, think outside the square.
If you would like a flyer for your business window, that can be done as well, via post, email for you to print or drop off. If you wish to purchase tickets, these are $10.00 each. Please email Caroline Garbutt at the following: email@example.com.
Your help and support is really appreciated, as this will more than likely be the last fundraiser for us, before we head home to start our new lives of this journey in Upper Hutt.