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Please help Lisa to find a cure and live

  • GREAT NEWS!!!!!

      30 January 2017

    Update:

    After Lisa’s horrendous experience at Hawkes Bay hospital on Friday last week we went into full search mode for a private specialist to provide a second opinion. On Saturday morning we discovered that the surgeon who has treated Lisa for the last 6 years may not dead as she’d been led to believe by Hawkes Bay hospital. We waited until today to let everyone know because we needed to be sure that it was in fact him and Lisa was not getting her hopes up until we had this confirmed. The great news is that this man is very much alive, he no longer works in the public health system, works part time in private practice. The other great news is that with a GP referral (hopefully today) that the specialist can see her in two weeks. We have enough funds to cover the costs associated with this first consult and travel to and from Wellington. At this stage we won’t know what the next steps are until she has seen him. It may be that if private surgery is needed ASAP we will swing into full fund-raising mode (as surgery in the private system is not cheap). There are a lot of uncertainties around this until we know what the specialist has to say. Once we know what the specialist says, we can plan what we need to do from there.

    Lisa is ecstatic, now she does not need to worry about finding the right person to treat her, all of the other things she needs now are not as insurmountable as they seemed before. Thank you all for supporting Lisa and putting in the hard yards to see her through, what has been a pretty hard time. No doubt, there are some serious concerns about her treatment in the public system thus far, starting with what happened at her specialist appointment in Wellington, to her experience at Hawkes Bay hospital last week and especially on Friday. In time these things will be looked at and dealt with. Meanwhile Lisa is focussed on getting to Wellington to see the one specialist whom she trusts the most to get his advice and opinion on the state of her chait tube and what is needed to return to her previous state of health.

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  • Message from Lisa

      27 January 2017

    I am going into Hastings hospital today, for the third time this week to have a CT scan. My tube popped out last weekend, which has never happened before. At this point I haven't eaten (or defecated) for about 8 days- luckily I was a little on the cuddly side to begin with!

    Hopefully they can pin point where the urgent issue is, and have someone brave enough to do what needs to be done, as a temporary fix.

    Meanwhile, my search for a more permanent, life enabling solution continues, so people, friends, and friends I haven't met yet, please keep sharing this post. Maybe, just maybe, the right people will see it x

    Thank you for all your messages of support,and prayers; and thank you to those who have contributed to the cause. I appreciate each and every one of you.

    Caiyah, (my daughter), and I, are in Napier now, being loved and cared for by Tara Preston - who is an absolute angel, juggling being a full time solo parent, with working full time, and being my rock, confidant, and nurse. This woman has such an amazing heart and soul, I feel so blessed to have her in our lives.

    With any luck, we will all contribute to a long term solution, or cure, for this debilitating condition. Not only for myself, but for others too.

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  • News

      25 January 2017

    Hi all

    On Sunday Lisa returned to hospital because the infection did not appear to be subsiding, she expected to be admitted but instead was taken off the antibiotics as it was suspected these may be making her unwell. Then on Monday Lisa had to return to the hospital as her tube had come out, after x-rays it was decided they would do surgery to refit the tube Wednesday (today) (Pease note the tube operation is a standard procedure that Lisa has had yearly over the last 6 years, it is not the miracle medical intervention that she is looking for to prolong her life). Lisa went home and presented for the surgery today. However, after admission and all the other hospital protocols, the hospital sent Lisa home again because they are too busy to operate. Meanwhile Lisa is now solely on a liquid diet, she cannot eat or use her tube. She has been without food for five days now. This, my friends is the current state of affairs in our health system, where hospitals have to make decisions that impact on people like Lisa. Meanwhile Lisa still needs your support and help to share her story in the hope of finding the surgeon who may have some idea how to give her some normalcy again. We are still trying to raise funds to get her belongings packed and moved from Wellington, a house in Napier and funds for private consultations with specialist surgeons if the public health system cannot meet her needs (they're feeling woefully inadequate at the moment). Thank you for supporting Lisa and her daughter and a big thank you for sharing her message.

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  • Thank you

      22 January 2017

    Hi everyone, I just want to say thank you for donating to help Lisa. I intend to provide an update on progress in the next few days. At the moment she is staying with a friend in Napier, with the view of finding accommodation for her and her daughter, your donations will help her achieve this. She is being well looked after by her supporters at present but is still fighting infection. She is tired but happier with her friends who are all fussing over her.

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    • 25/01/2017 by Christine Thomas

      Hi all, update number two.

      On Sunday Lisa returned to hospital because the infection did not appear to be subsiding, she expected to be admitted but instead was taken off the antibiotics as it was suspected these may be making her unwell. Then on Monday Lisa had to return to the hospital as her tube had come out, after x-rays it was decided they would do surgery to refit the tube Wednesday (today) (Pease note the tube operation is a standard procedure that Lisa has had yearly over the last 6 years, it is not the miracle medical intervention that she is looking for to prolong her life). Lisa went home and presented for the surgery today. However, after admission and all the other hospital protocols, the hospital sent Lisa home again because they are too busy to operate. Meanwhile Lisa is now solely on a liquid diet, she cannot eat or use her tube. She has been without food for five days now. This my friends is the current state of affairs in our health system, where hospitals are having to make decisions that impact on people like Lisa. Meanwhile Lisa still needs your support and help to share her story in the hope of finding the surgeon who may have some idea how to give her some normalcy again. We are still trying to raise funds to get her belongings packed and moved from Wellington, a house in Napier and funds for private consultations with specialist surgeons if the public health system cannot meet her needs (they're feeling woefully inadequate at the moment). Thank you for supporting Lisa and her daughter and a big thank you for sharing her message.