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little Toby

  • back on the ward

      14 January 2016

    Yay good news toby is out of icu and back on the ward to continue his chemo. He is full of high spirit and acting like a 5 year old :) thank you to all those donors you are amazing and I will keep you all updated as I know more. But again thank you very much.

      2 comments  |  Login to leave a comment
    • 03/02/2016 by emma adams

      Update so far is hes still having chemo in his spinal fluid along with lumbar punctures 3 times a week.. Hes now started his other chemo treatments one which he had a bad reaction to and has to be desensitized against tmro back down in picu as a precaution.. Hes on chemo 12 hourly along with steroids.. The chemo is definitely taking its toll hes started to lose his hair has mouth ulsers so hes not eating or talking but still getting food from the ng tube and spews from time to time .. Hes very tired because of it all but trying to keep him happy as possible

    • 24/03/2016 by Vicki Ebbutt

      Sending all our love to you Toby and family. Kyle says he hope you get well soon and he misses you lots xxxx