Melissa was diagnosed in 2002 with Neuroendocrine Cancer. Please help Melissa get a current accurate diagnosis and the best treatment plan.
Northland
Melissa Lockyer Sutherland is a Mother, Pianist and aspiring singer. She was diagnosed in 2002 with a Paraganglioma, then a recurrence in 2005. These are tumours of a rare form of Cancer known also as Neuroendocrine Tumours or NETs /Cancer which are difficult to diagnose. For further info go to:
https://www.unicornfoundation.org.au/page/8/what-are-nets
Melissa has had two surgical operations (excision of tumours); in 2002 and then 2014 that have resulted in nerve damage, First Bite Syndrome, as well as Horners and Harlequin Syndrome. Melissa who lives in rural Northland, experiences ongoing daily (at times debilitating) pain, issues with energy, numerous other symptoms and hypertension, possibly caused by long-term ongoing or recurring NETs. The concern and danger with these tumours being so rare, is that they are often misunderstood, undetected with some scans, go unrecognized, and are one of the most misdiagnosed conditions.
Melissa lives with a mothers fear of death, and how this disease could possibly also genetically affect her daughters Ivy, Ruby and Brooke. Ruby who is 18 fears leaving the region because of her mothers health.
We are involved because Melissa wants to live and provide hope for her daughters and also because of the difficulty for those who live in rural areas who are diagnosed with rare illnesses to access appropriate services and care.
Funds raised will be used for:
+ A current accurate and ongoing diagnosis in consultation with an Endocrinologist and NET specialists. This includes other diagnostic options such as appropriate specialised scans for NETs, Genetic Testing.
+ The Best Treatment Plan with multi-disciplinary care. This may involve travel to Australia where there is treatment unavailable in New Zealand.
Your message will be displayed on the page and emailed to the donor.
Your new message will also be emailed to the donor.
Saving a blank entry will delete the current comment.