HelpTheBarretts

For.the last week Jace has had a real bad right shoulder pain and all over exhaustion.

He has tossed and turned so much. Cough has increased. Dropping in colour. Wonky on legs ive just noticed tonight too. The lumps in his foot and amount of GVHD sores have grown as has my constant feeling of concern and fear.

We meet with NZ blind next week at least, im hoping maybe it can give us some hope. Maybe lift Jaces spirit a bit (and mine).

Im also in the process of finally putting in my complaint to the health and disabilities commisioner regarding Jaces right eye. Its going to be a longgggggggg process.