Hidradenitis Suppurativa is taking my quality of life, help me get some of that back.
Help me regain my quality of life lost by my debilitating and devastating chronic skin condition, Hidradenitis Suppurativa.
Dunedin, Otago
Hi visitors,
I appreciate you clicking on this page and taking your time to read this.
A little bit about me - My names Jordyn, I'm a 26 year old woman who lives in Otago NZ, and i suffer with a chronic skin condition called Hidradenitis Suppurativa.
What is Hidradenitis Suppurativa? Its a chronic skin condition that causes painful, recurring boils and cysts in areas with sweat glands, with mine mainly effecting my groin area.
I had my first painful 'lump' in late 2019, and was diagnosed in late 2022, at the end of my 1st year of nursing study, i am now in my final year.
I have been on multiple medications, with me currently on the last biologic medication funded in New Zealand for my skin condition, called secukinumab (what a mouthful) leaving me immunocompromised. Sadly, as some of you reading will know, public dermatology in the south island has 'collapsed', leaving patients such as myself with no specialist to go to anymore, leading me back to my GP on a weekly basis. Majority of the time, I am also on antibiotics for infections, with the high risk of sepsis lingering around the corner. With my condition being so debilitating, i struggle to do a lot of daily life activities such as bathing, toileting, dressing and mobilizing without the assistance of my wonderful mum.
I understand peoples situations are different, that not everyone is in the position to donate, but even making people aware of this condition makes a huge difference as it is so common, but so rarely diagnosed.
Use of funds
Donations will fund non-covered expenses for managing my skin condition, including GP, nurse, and urgent doctor appointments, medications, skin products (body washes, creams, gels), clothing (pants and shorts), and mobility aids.
Latest update
💜 One Year On – Thank You 23 June 2025
To everyone who donated, shared, or supported me over the past year — thank you from the bottom of my heart. Your kindness and generosity got me through one of the hardest years of my life.
It’s been a full year since the traumatic ED visit that led me to create this page. At that time, I was overwhelmed, in constant pain, and juggling full-time study and placements. I felt like I was drowning — physically, emotionally, and financially.
But because of your support, I’ve made it through. I’ve achieved things I never thought I could. I’ve grown stronger, and I’m still standing.
🌿 My Journey
Over the past year, I’ve taken steps I didn’t think I could. I’ve made progress not just physically, but mentally and emotionally too. Your support helped me cover meds, fuel for appointments, and dressings.
I also connected with a specialist who truly cares — a glimmer of hope in a system where wait times are long and many fall through the cracks. I’m still waiting. I haven’t even had my surgical consult yet — that’s the reality for many of us in public healthcare, even at our lowest.
🤍 Thank You Again
Although this page is now closed, I wanted to leave one final update to say thank you. Every donation, message, and share made a difference.
You helped carry me when I couldn’t carry myself.
I’m still on this journey. I’m still waiting for surgery. But I’m no longer walking it alone — and that’s because of the community that came together here.
With love and appreciation,
J 💜
Latest donations
Thankyou my friend, you are so generous and I appreciate you so so much ❤️
Thankyou so much for your donation, I really appreciate it ❤️
Thankyou so much ❤️ I really appreciate your donation. Means alot ❤️
Thankyou so much Jo for your donation, your generosity doesn't go unnoticed ❤️
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