HOPE FOR SUMMER #BATTENSBEATER
An ultra rare Princess who is fighting a rare disease Batten Disease CLN1 only one ever in NZ her fight is our fight!💯❤️❤️❤️
Nationwide
Summer is 11 years old with a rare terminal Disease called Batten Disease CLN1 there is no cure no treatment. This page is to support Summer in this fight against this horrid disease with on going medical cost medical equipment travel costs for appointments and memories and any other costs that arise from this evil Disease. Summer now has no vision at all. Her ability to eat, talk and walk are coming to an end. We need to make as many memories as fast as possible. We will never give up on hope or making our beautiful girl smile
Ray Mudford's involvement (page creator)
Parents
Use of funds
Medical costs medical equipment costs making memeories and other expenses for helping Summer to be as comfortable as possible.
Other page links
Latest update
Summer’s new chair 21 August 2025
We finally were able to get Summer her very own new lazy boy chair. We wouldn’t of been able to do this without your generous donations. Thank you 🦄💗
Latest donations
Thank you so much Leamington school community 💙 your continuous love and support is AMAZING 🙌 💗🦄💝
Who's involved?
Help Fundraise
You can create your own page to help fundraise for this cause.Page Q&A
One question has been asked already. Check it out and ask yours here.Any concerns?
Report this pageThank the donor
Your message will be displayed on the page and emailed to the donor.
Your new message will also be emailed to the donor.
Saving a blank entry will delete the current comment.