Life-changing treatment not available in NZ that will impact my entire future.
New Plymouth, Taranaki
Hi everyone, I'm Liv.
I hid big secrets when I was in mummy’s puku. I was born with lots of medical issues that surprised everyone... My oesophagus was split in two, and part of it was attached to a fragile windpipe- crazy, aye!
The biggest secret: I have superpowered genes! I have Trisomy 21 (Down Syndrome), meaning three copies of the 21st chromosome.
This has led to challenges in my everyday life.
I get sick often & at times need to see my friends at Taranaki Base and Waikato hospitals -sometimes for weeks. I miss my big brother & my parent that stays behind when this happens.
While I'm mostly like other kids, I reach milestones at a much slower pace. I need a lot of love, patience & help to do most things a 3yr old can do, like stand, walk, feed myself safely, play and communicate.
I'll get there one day... With your support, that day can be soon!
An incredible place called NAPA in Sydney can help me, and I've got a spot to visit them in September. It’s my best chance to kick ass in this world!
For 3 weeks, 4 hours a day, I'll get specialised intensive therapies that push my abilities. The goals are to walk, feed safely, communicate more & play functionally.
My whānau is one of many Kiwi families that need to raise funds for their children to receive this treatment to improve their quality of life.
Please help support us getting there. Any funding beyond the goal will be used for further rounds of life-changing intensives that will continue to help me reach my potential.
Love Liv
Liv attends our early learning centre. We have had the privilege of supporting Liv's whānau since Ezra (Liv's big brother) came to us in 2019. They are part of our whānau. Lucia is Liv's mum.
Flights, accommodation and daily expenses of travelling with a special needs and medically complex child whilst Mum (Lu) and Dad take time off work.
Liv made it to NAPA! 14 October 2024
We've just returned from the NAPA Center in Sydney and Liv has learnt a few cool tricks 🥰
Thank you all so much for your support in making this dream a reality and in particular, a monumental thank you to Anna Ryder and the wonderful souls at Ruru House for spearheading this campaign. We couldn't have done it without you and we are forever indebted 😘
Thank you for the love 🩷
Thank you Anne 🩷
Thank you so much 😊
Thank you Vanessa 🩷
Thank you so much 😊
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