Izzy is Stressed and Compressed !! Please help us to fund life-saving surgery in Germany that is not available in New Zealand

Izzy is 15 and has Hypermobile Ehlers Danlos Syndrome (EDS).

A rare genetic connective tissue disorder that affects every part of her body: joints, bones, soft tissue, blood vessels & internal organs.

Over the last 9 months Izzy has lost the ability to eat solid food and since May she has been fed by a feeding tube into her stomach 24hrs a day. She has lost 25kg in weight, now relies on a wheelchair to go out, suffers with constant debilitating pain and nausea, and is struggling to keep up with her schoolwork due to lack of energy and brain fog caused by malnutrition.

Izzy has finally been diagnosed with Abdominal Vascular Compression Syndromes (AVCS) which is an even rarer condition related to Hypermobile EDS. AVCS causes compressions of several of the main veins/arteries that supply blood to her body resulting in debilitating pain, nausea, and the inability to eat. It is heart-breaking watching her fade away before our eyes.

Treatment for AVCS is not available in New Zealand so we need to head to Germany for a life-saving operation to release the compressions and give her a fighting chance at a future. Without this treatment Izzy’s prospects of survival are slim.

Izzy is a beautiful girl with a kind and gentle soul who has big plans for her life. She is incredibly creative and loves art and school. Izzy has a passion for animals, attends Riding for the Disabled, and plans to be a Vet when she is older.

Please help us to get Izzy to Germany and give her a future.