14-month-old Jack's bacterial meningitis journey
Canterbury
Hello wonderful people,
This page is for little Jack, who is just 14 months old. About a week ago, Jack became suddenly very unwell with a high fever, vomiting, extreme lethargy and difficulty waking. His parents, Sammy and Joel realized that something was very wrong and took him to the emergency department. It was then confirmed that he was septic and it quickly became critical. Testing and imaging was done which indicated that Jack had pneumococcal bacterial meningitis, which kills roughly 1 in 10 infected people.
Jack is now thankfully stable and improving, but at this stage will spend a minimum of 14 days in hospital receiving treatment. The biggest concern now is his hearing. Since becoming sick, Jack has stopped responding normally to sound and has now essentially failed four hearing tests, with no response even to very loud sounds. He is now waiting for an urgent ABR brain-response hearing test to determine the extent of his hearing loss. If severe or profound permanent loss is confirmed, cochlear implants may be the next step.
Sammy and Joel are currently a one-income family in the midst of global rising costs of living, facing an extended hospital stay and an unknown amount of follow-up and rehabilitation for Jack. If you are in a position to give, any amount is helpful. This page will also be used to share updates on Jack’s progress, taking some pressure off Sammy and Joel having to update everyone individually while they focus on him and their wee family.
Sammy is one of my closest friends, who has a huge heart, is a wonderful mum, wife, friend and human.
Buffering the family while they spend time in the hospital, help them with living costs and any unfunded recovery and treatment Jack may need.
Update on Jack 11 October 2026
Jack recently had another hearing test he's at the level where they want him to be, which is wonderful! Sammy and Joel got to see the brain activity from different sounds and he can hear more than they expected, which is obviously such a relief.
He had a strange rash all over his body for the last few days, so he spent another day in ED to ensure it was all right. Apparently, it was just a virus and they have been watching it closely. On Monday, Jack has another CT scan to check his brain fluid collection to ensure that it's stable. They will also find out if he can stop the IV antibiotics soon, which Sammy said that it will be so nice once he's able to get his pic line out! Jack is still sore at night but hopefully that will continue to improve as time goes on. It's still early days but Sammy and Joel are so proud of him <3
Again, they are so grateful for everyone! Please keep up the good vibes, thoughts and prayers that things continue to progress this way.
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