Fulfil Jacks last dream

$18,010 donated
Given by 333 generous donors in around 12 months

Jack has spent his whole life in and out of hospital having surgeries and treatment for a rare terminal illness called Hunter Syndrome.


Jacks dream since he was little was to go to America and go to Disneyland.

Please help us fulfil Jacks Dream next year before it's too late.

Just like any other mother, Kirsty Taylor has all the hopes and dreams of a happy family and watching her child grow and experience all the things that make life wonderful and happy.

But when Jack is born with Hunter Syndrome, an extremely rare and terminal illness, and told by the doctors to take him home and make everyday as happy as possible for him because they didn’t know how long he was going to live for.

Finding out that there was a treatment available in other countries around the world, she knew that if she could just get her son the treatment that he required and deserved, that he COULD have a chance at a happy and better quality of life than what he was otherwise facing.

To date Jack Jack has endured numerous ear, nose and throat surgeries, 2 carpel tunnel surgeries on both hands, 2 port insertion surges so that he can receive weekly treatment, an open heart surgery, hip surgery, minor neuro surgery twice to determine the level of inter cranial pressure he has and now up and coming neuro surgery to insert a shunt in December. He has been in heart failure twice after two of his surgeries, been close to bleeding out, resulting in emergency blood transfusion. He has had too many MRIs and Cat Scans to count.

He deals with constant bone/ joint pain disabilities with short limbs and currently dealing with possible spinel cord compression and therefore is in and out of a wheelchair often. He is partially deaf and has the intelligence and super power labels of ADHD, ADD, ODD, learning disabilities………………..and the list goes on.

All of these treatments require travelling to Starship Childrens hospital which takes him away from home and along side that Jack is in the local hospital every Wednesday receiving the high cost treatment called Enzyme Therapy Replacement (ERT for short).

When Jack was 6 yrs old, very ill and going down hill fast, after a two year battle with the government drug department of Pharmac, we finally managed to get him the treatment he needed. This treatment is infused into his port-a-cath on a weekly basis (which has gained infections in so that requires a week in hospital to clear), for the rest of his life. It has kept him with us for longer (but not long), and given him better quality of life with more ease.

We require help in fundraising to make this trip happen which includes covering the costs of hospital treatment in the event that Jacks ends up getting sick while away as we are not able to get Travel Insurance cover for him.


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Latest update

Jack Peacock on 7 Blunt  5 August 2015

A fundraising promo made with Jack and his little brother Alex.

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Latest donations

Guest Donor
Guest Donor on 03 Sep 2015
Hello Jack, mum and Alex - hope you are all as well and as happy as you can be.
Max on 31 Aug 2015
Hi jack, i am sharing my chore money with you i hope it helps you fufill your dream to go to disney land From Max
Rachael Devon
Rachael Devon on 21 Aug 2015
I just read about gorgeous, strong little Jack from NZ with Hunter Syndrome. After finally reading his story through all the tears, I was humbled by his beautiful smile and resilience. I hope he has a wonderful and exciting time in America, especially in Disney Land! What a strong and inspiring young man he is.
Ethel McLennon
Ethel McLennon on 20 Aug 2015
Great to be able to say Hello again Jack, mum and Alex, and wishing you only the best in every way.
Guest Donor
Guest Donor on 14 Aug 2015
I wish you every success with your fund-raising and hope Jack has a ball in USA. Big hugs to both he and yourself.

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Created by, and paying to a verified bank account of, Kirsty Taylor
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This page was created on 4 Oct 2014 and closed on 30 Sep 2015.