Help Jade and Celena-Jay Miller

**UPDATE ON NENA**

A message from Celena mum (jade)

Morning everyone,

So i come with a little bit of good news =D my little girl decided she wanted to start breathing on her own over night :').

Her condition hasnt changed but its the bestest news we have heard so far. Keep praying and doing what yall are doing because its working =D

Shes so strong! Im so proud of her.

14/02/2016 **Update on celena-jay**

Morning everyone.

So this morning not so good. Celenas was put back on the breathing machine lastnight as she decided to stop. She has been giving a really specail drug that has only been used once in nz before. Apparently its very very expensive and they had to go through alot of nooks and crannys to get it. Because of the amount of damage to our girls brain they gave it for free and sent it over last night. So other than that nothings changed. All i know is that our girl is strong, shes definitely a fighter!

Good morning ?

on behalf of Jade and celena Miller and myself want to say a big thank you to those who have donated money and to those who are sharing the page to help raise funds it will be along journey for Jade and young celena please keep sharing and praying and sending your love for Jade and celena will update again soon once again a big thank you ?

Regards

Katrina

15/2/2016**update**

Celena is now breathing on her own again with minimal support. Yesterday and lastnight my girl was moving her head flikkering her eyes and sqeezing our hands. Althought nothing has changed in her condition, we feel shes been responding to us. She is having another m.r.i scan on her brain on wednesday. Hopefully then we should know more. Their biggest concern at this stage is her brain. They have givin her all the treatment that they can for her condition. So now its just waiting, waiting, waiting.

**update on our girl nena**

So throughout the day nena has made some big improvements. She is starting to move her head, right arm, and both legs! Today she grabbed my fingers and sqeezed them! She is thee most strongest, bravest little girl i know! Today i also found out that the drug nenas was gifted is the most expensive drug in the world!! And our little girl & us were lucly enough to get it gifted! $100 thousand dollars it would have costed. Im feeling so so thankful! As that drug is obviously working for our girl!

Okay for those who feel like they have a need to ring Starship Children's Hospital.

Celena-Jay Leofo Miller is the child' full name.

*update**

Morning all.

Nena is slowly starting to open her eyes. Shes starting to move more now aswell. Although she is still half asleep she sure is improving. Our little girl is off for her M.R.I this morning so will have another update later on in the day.

I just want to take this time to thank everyone for all the support and kind messages for our girl and family. It means alot to us all, and our little girl sure will appreciate it when she understands xox

**2nd update**

So.....

Celenas scan results are back.

Good news is the swelling in her brain has gone down, and the doctors and nurses are very proud of celena and how far she has come. Considering they thought she wasnt going to make it, she is now opening her eyes and looking around at all of us. The thinking side of her brain looks to be fine (which is awsome) but... the movement side of her brain has damage, there is signs of lots of strokes and bleeding in the department. This means that we will be here for months, she needs alot of treatment and alot of support and compfort. Because of her age there is chance that she will recover completely but all we can do is wait. She will be in i.c.u for a few weeks yet and then she will be moved to the kidney ward for a few months, after that she will have to go to a rehabilitaion center to start teaching her to get moving again.

So although its not all good news.. i know, my mum knows, and her umak knows she is going to make it though this and even if she is not the same for a while i know and have faith the our little girl, no matter how long it takes, is going to recover from this. I know she is. Shes a fighter, shes so strong, and she is so so brave!!

**UPDATE**

Morning everyone!

Nenas having some more special medication today. They are also going to take the breathing tube out and see how she goes :) the brain team came down thismorning and they are very impressed with nena :) shes amazing! They also told us that she may be moved up to the ward soon aswell :) exciting stuff.

#littlestepsatatime #support #love #prayers #strong #brave #beautiful

So this happend.....

I got to hold my little girl!!! I got to give her cuddles!! :') im crying with so much happyness right now! Its been a whole week +, finally my girls back in my arms. Im one happy mummy right now.

Hey everyone :) nenas mum here.

Celena has been moved up to the kindey ward now. Everyone is very impressed with her progress. We still have a long road ahead of us. Thankyou everyone for all the donations and kind words :) we both really apprecitate it.

Hey everyone, havent done an update for abit. The past few days have been horrible. Nenas has been in so much pain thankfully we think we have it undercontrol now. Nena had to go for a c.t scan this morning as we thought there was something going on, she wasnt breathing right, poor thing was in pain, her heart rate went right down to 55, it was horrible!!!! But.... results came back and turns out the swelling in her brain has gone, it doesnt mean the damage hasnt gone but atleast we know her brain is healing. They told us it may be just that because she is becomming more alert and is off a few medications, that she will be feeling it. Shes probably over being sore and wants us to know. This evening she has been betrer though and looking better. She gave me and her nanan a few smiles, & we gave her a little tickle . Her blood results for today have come back and have improved aswell. Its been a tough few days for nena, aswell as me and mum. Fingers crossed she has a good sleep tonight and can have a better day tomorrow.

Xx

**update**

Ok so here it is.....

Something is going on with celena, and my personal opinion is that she has gotten worse.

Lastnight celena was having multiple seizures. She stoped breathing. And i knew there was something wrong. I have no answers to any of this right now. But i think its worse than what was originally thought. At the moment i think we are trying to prepare ourselfs. i know it sounds out there and scary and i know im not a doctor... but i am her mother and so far my instincs have been right. I dont know what else to put in this update because thats all i can really give you all as of yet.

I've posted on behalf of Jade please give generously or share the page we have no idea how long it will be until they come home ?

What an amazing weekend!! Nena has done so well! Shes off dyalisis and we are moving over to the brain ward soon :) iv been told that we may be comming back to wellington soon =D just depends on what nenas needs are, once they sus that we will know :) so theres a nuro team and rehab in wellington that we could be going to if they can cater nenas needs :) exciting!! Shes doing so well! And she can fully understand everything i say, its just the moving and speach thats will take a while to get sorted. The nurse we had yesterday said they are pretty confidant that nena will walk again!! So thats even more exciting!! Onwards & upwards my little girl!! Ill protect you, i love you.

#faith #hope #love