Back to page

Jay Jay, Skylah and family need assistance with her brain tumor journey

  • Back to Auckland

      16 July 2024
    Posted by: Jay Jay Bloor
    Main image

    On Sunday the 14th July we flew to Auckland for Skylah to have a few check ups. She has had an ultrasound of her heart to make sure that everything is okay there, and she also had an X-Ray of her left hand so they can measure her growth plates before starting chemotherapy. Today we are in Greenlane having an eye test, to see how much Skylah’s eyesight has decreased and if there is the possibility of glasses to help her. At this stage she still has no vision in her left eye and very little in her right eye.

    Skylah is also having an MRI today to check that the shunt is still in place, and that nothing abnormal has happened with the tumor. Hopefully will will be home tomorrow or Thursday and return to Auckland next week to start Chemotherapy.

      0 comments  |  Login to leave a comment

  • What’s been happening

      24 June 2024
    Posted by: Jay Jay Bloor
    Main image

    On the 11th June, Skylah started to develop severe headaches, and had some swelling around the area that the surgeons entered her skull for the biopsy. After another MRI on the 12th June it showed the fluid was building up so they decided to do a ‘tap’ which is just putting a needle in and draining the fluid with syringes. The fluid built up again rather quickly and on the 13th June Skylah was taken into theatre again to have a shunt put in, allowing the excess fluid to drain into her abdominal area. After that she returned to her normal happy self and we were able to return to Whanganui on the 20th June. We are still waiting for results from the biopsy to determine the best course of treatment, but it will likely be a form of chemotherapy.

      0 comments  |  Login to leave a comment

  • A special visitor

      8 June 2024
    Posted by: Jay Jay Bloor
    Main image

    Skylah is still in good spirits, she’s still very tired but wanting to get up and move around more. Today she had a visit from a therapy dog named Hunter which she loved.

      1 comment  |  Login to leave a comment

    • 08/06/2024 by Sarah

      Hi Skylar. I bet you enjoyed seeing the dog today. What a special treat for you. From Mrs Simpson.

  • First surgery

      6 June 2024
    Posted by: Jay Jay Bloor
    Main image

    Skylah had her first surgery yesterday (05/06/24) which was to do a biopsy of the tumor and drain some fluid to relieve pressure. Surgery went very well, she is very tired and we should know more when the results come back. It can take up to 2 weeks to get the results of the biopsy. For now we will not be posting post op photos but this is a very happy girl in pre-op before her surgery yesterday

      0 comments  |  Login to leave a comment