We would love to attend the 2015 CFC conference in America
Nationwide
Cardio-facio-cutaneous (CFC) syndrome effects approximately 200-300 people worldwide. Every 2 years there is conference in America where we will get to meet other families and find out valuable information about the condition
Update for 30/10/2013 30 October 2013
Jenna-Faith turned 5 on Saturday, it was celebrated with friends and family. We had some special guest at her party that completely made her day. She started school on Tuesday as her special funding is in place and for now she is only doing 2 hours a day for the first couple of weeks so we can build up slowly to full days.