2019 Update
15 April 2019Joenah’s counts haven’t recovered to proceed with cycle 12. He has been unwell in himself over the last week and admitted at the hospital since Tuesday. His hemoglobin level was low. He had some blood transfusion and platelets top ups. He is back on catheter as to reduce residual volume and chronic bladder damage. His bleeding, temperature and pain are well controlled on pregabalin, amitriptyline and antibiotics. He is back on clexane until the line is removed to reduce the risk of thrombus progression yesterday, as it was put on hold because of the bleeding. Joenah is making progress on mobilisation and manage 20 minutes walk. He is on IV fluids as he is also dehydrated. Doctor said he will be monitored at the hospital until his counts are fine for the next cycle. 🙏
It’s about seven months now but we are so grateful and thankful to the Lord for his unconditional love upon Joenah.
Thank you very much to all our families, friends and everyone for your kindness support. It’s a tough journey and it felt like being on a roller coaster ride. Thank you everyone for everything you have done for Joenah..❤️