Main image

Join Nora's Army

Cause page created in the Health category by Elyse Guise


$185,773 donated

Given by 2944 generous donors in 4 weeks

Share   Donate

Life saving treatment for our darling Nora

Main image
  Canterbury

In August 2018 5 year old Nora was diagnosed with hepatoblastoma, cancer of the liver that occurs in 1 in 1 million.  Unfortunately, Nora's cancer was also found to be in her lungs.  In the last 14 months Nora has gone through 9 rounds of chemotherapy which caused the usual side effects but it also caused permanent hearing loss, she has had 3 surgeries including removing 60% of her liver, her gallbladder and half of one lung.  Nora now has over 850 beads of courage.  

It was found the likely cause of Nora's cancer was a TP53 gene mutation, this gene helps suppress the growth of tumours.  This now makes her susceptible to a large number of cancers at much higher risk than the general population.   Heartbreakingly, Nora's Dad and little 3 year old sister were also found to have this and are now undergoing testing for cancer.  

Nora's liver remains cancer free but the disease in her lungs is proving to be stubborn.  Nora, now 6, has exhausted all of the curative treatments available in New Zealand but she has been accepted into a CAR T cell trial in Texas which is her last chance for a cure.  The trial is part funded but we need your help with the rest.  The costs including the unfunded portion, accommodation and flights is estimated at $210,000 NZD but this could change if Nora had to be admitted.  

It takes a village to raise a child but we need an army to save ours. 

Use of funds

Unfunded portion of the treatment, accommodation, flights and expenses in Texas. If things changed and we no longer required the money we would use some to make Nora's last days amazing plus create a charity in her name to assist families with cancer.


Latest update

Update image

Nora's Army  21 October 2019

Christchurch/ Selwyn people:

A huge auction night has been organised by some amazing people and Nora's school.

Date: Nov 1 7-10pm

Where: Pemberton in Prebbleton

Price: $40

Guest Speaker: Self professed genetically modified human David Downs (our CAR T cell hero)

MC: Celebrity chef Jax Hamilton

There is so much on offer including a $5,000 Media Works advertising package, scenic flights, Augustine clothing, jewellery, kids' party packages, hotel and restaurant vouchers, luggage, spa vouchers, sports gear, band merchandise, all sorts of attraction passes and so much more!

The details: You will have to leave the kids at home. You get a goodie bag inspired by Nora. Drink on arrival. Food platters. Cash bar. Silent and live auctions plus raffles too.

More information and how to get a ticket here:

http://www.clearview.school.nz/noras-army/

Xxxx

Read 7 more updates


Latest donations

  • Juliet

    Juliet 5 mins ago

    $20

    $20

  • Pam

    Pam 4 hours ago

    $10

    What a brave little girl.

    $10

  • Auction For Nora @ Ruby + Bear

    Auction For Nora @ Ruby + Bear 13 hours ago

    $3,183

    Our fingers are crossed for you all. Big hugs and kindness from everyone who bid on the Auction For Nora at Ruby + Bear xoxoxo

    $3,183

  • Justine

    Justine 18 hours ago

    $50

    Hope this small amount helps you to reach your goals. Thinking of you and sending prayers from a parent who has lost a child to cancer.

    $50

  • Marna

    Marna 22 hours ago

    $90

    $90


Who's involved?

Elyse Guise's avatar
Created by, and paying to a verified bank account of, Elyse Guise

Page Moderated The page has been checked by our team to make sure it complies with our terms and conditions.

Fundraisers supporting us

You can start a fundraiser to have your own page that raises money directly for the beneficiary.

Got a question for the page owner?

3 questions have been asked already. Check them out and ask yours here.

Any concerns?

Report this page
This page was created on 20 Sep 2019 and closes on 20 Dec 2019.
$185,773 donated

Given by 2944 generous donors in 4 weeks

  Donate Fundraise Share
Share
Share a link to this page to help spread the word

  Facebook

  Twitter

  Email

  Copy Link

  Embed

×