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Join us this Rare Disease Day to help those with a rare disorder

  • Thanks to you we're building momentum

      27 February 2020
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    Rare Disease Day is almost here, and tomorrow we present our strategic priorities to the government. Our CEO Lisa Foster is on the AM show tomorrow morning, and initiatives such as our Rare Beer are bringing attention to those living with a Rare Disorder, and the challenges they face. So thank-you to everyone who has supported us so far. It's because of you that we can continue our important work!

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  • Rare Disease Day is almost here!

      25 February 2020
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    Thank you so much to the generous people that have already given to our campaign in the lead-up to Rare Disease Day (February 29). It's been wonderful to see all of the support, to have new people coming forward and say they learned of us through the campaign, and of course to raise money to continue or important work. Let's keep the momentum going. Let everyone you know about our campaign in time for Saturday!

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