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Keira's Quality Of Life.

  • Doing well

      18 February 2020
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    Just wanted to let everyone know that miss Keira has been doing well thanks to your on going support she has only had two lots of seizures in 6 weeks so thanks to her medication this has increased her quality of life and is so happy and cheeky. We will be having more procedures in the next month to help with her eye pressure but other than that she is doing well. Thanks so much again for everyone's support.

    Love from Keira and sascha

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  • Thank you for 2019 support

      23 December 2019
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    Hi there,

    I want to say a huge thank you for everyone's support in 2019 being able to fund her medication means her quality of life was improved drastically. I can not thank everyone enough for your kind support.

    Keira has been more responsive and is able to be more assertive and has been able to stay awake and play for longer periods of time. I can not believe this child has come so far and completely changed into a cheeky 4 year old with so much personality.

    We will be doing fundraisers in 2020 to continue to fund her medication and appreciate all the help we get on givealittle.

    Thanks from the bottom of my heart for changing my wee girls life.

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  • Out & about living life

      8 July 2019
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    This week we celebrate Keira's fourth birthday and we want to share some pictures for you guys to see how far we've come.

    Keira is still on her medication thanks to the overwhelming amount of support from you guys and is thriving! Since being on the medication she has been more active and her seizures have become a lot more manageable and almost completely gone.

    We have got to experience more then we thought we ever would. She has been to luma, a light event in queenstown which she loved and was great to see her react to the different lights. Also Keira has been able to go to see a crusaders rugby game (thanks to the crusaders who invited Keira along) and Keira was cheering the whole time.

    The price of her medication also has decreased ($330) which means it's more of a reality that we will be able to continue to keep on giving her it and keep getting the most out of life.

    We are looking into alternative ways of being able to fund her medication but have yet to be successful with any additional help.

    We will also be getting a wheelchair for more adventures as she is getting so big and we will still want to be out and about making the most of life.

    I want to thank everyone so much for the help we have received Keira and I truely appreciate it. This medication has done amazing things for us and Keira and I are able to enjoy life with a little financial stress gone.

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  • O.M.G

      10 January 2019
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    after a week on the new medicine the changes are amazing. She is interacting with people and looking at and blabbing to them. Previously she was in a world of her own. That was due to the effects of the seizures which with the new medicine are now reduced and smaller. It is like having a new child.

    THANK YOU SO MUCH to people who have donated. Cost of medication is ridiculous due to Government policy and till they change we will continue to battle for this wee angel. We are now working with her in the pool to build up her muscles then look at improving sitting and standing skills.

    AGAIN THANK YOU.

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