Kia Kaha Kainui
Kainui has been diagnosed with B cell acute lymphoblastic leukaemia and needs help with his upcoming journey.Bay of Plenty
Ko Gregg tõku pāpā
Ko Tash tõku māmā
Ko Te Whānau-ā-Apanui me Ngāi Tahu õku iwi
Ko Mātaatua me Uruao õku waka
Ko Maraenui me Koukourārata õku marae
Ko Hunter rāua ko Nikau õku tuākana
Ko Kennedy tõku tuahine
Ko Kainui tõku ingoa
My name is Kainui Te Ara Koopu Conning and I have Leukaemia.
Leukaemia is a cancer of the white blood cells. The type of Leukaemia I have is called B-cell acute Lymphoblastic Leukaemia. (BALL). It is a cancer that originates in my bone marrow & develops quickly. No one knows why this has happened, it just has.
There’s nothing anyone could have done to change that, so now we focus on what we can do and what we can control as a whanau. The Doctors and Nurses at the Starship Children’s Hospital have many of the answers and are absolutely amazing, they are beautiful people and we are truly grateful for them.
I’m doing my best to be brave and courageous but it’s scary and unknown and there’s lots of different stuff happening. But I still be cheeky when I can be. I will be in and out of hospital and the Ronald McDonald house over the next two years with some visits home if I’m not at too much risk. Because of my medication, my body will go through lots of challenges and changes but it’s all part of my journey.
My Pāpā said I’m his super hero because every day I wake up facing my fears even when I don’t want to. I get to talk most nights on skype to my brothers and sister so we are grateful for that. I’m so lucky I have my mummy making sure everything is in order and I take my medicines when I’m supposed to. She gives me all the cuddles and kisses I need to give me power.
This is my journey, but I’m not alone I have an army of people behind me with more love than the ocean has water. Thank you for any koha given, as this will go towards making good memories along my journey for me and my whanau.
Thank you for reading my story.
Hiirini Houia's involvement (page creator)
Family Friend, creating the page on there behalf while they prepare for this journey ahead
Use of funds
To support the immediate Whanau (mum, dad, Neddy and brothers) with travel and other expenses while looking after Kainui in Auckland, to make sure he has everything he needs and to spoil him like crazy when he is allowed day trips out of the hospital.
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This page was created on 19 Jun 2020 and closes on 19 Dec 2020.