help save our babygirl kylani

kylani is a sibling to step sisters manaia (9) lilly rose 8) and baby brother Te teri murray.kylani has a form of neuro degenerative disease which is rare form of brain disease and causes her to sezuire and her brain to shrink.doctors can not find a definitive diagnoses as it is a very rare disease. at 10months kylani was perscribed anitconvulsant medication. an eeg showed calcification in the brain and abnormal brain activity causing her to have severe seizures. at 12months MRI showed slight shrinkage of the brain .kylani and us parents have been in and out of hospital, since then every month her medication would increase we found dramatic changes. kylani was at her worst at 15months they had introduced an extra 10 anticonvulsant medications, kylani had gradually lost her ablities she was at the process of walking, was talking,sitting up enjoyed outdoors loved her independency(capable of feeding herself) . over the period of 3months kylani has lost all her abilities at such a rapid speed .Now she no longer smiles, she is now bedridden , with so much muscle tension and is in pain. kylani is so strong she has ben through so much and countless tests she is constantly battling for her life each day and is deteriorating in our arms. now we are resulting raising funds in getting stemcem treatment in the u.s as our country is so small we are unable to get the treatment she needs . please help us as a family provide our babygirl a quality of life and gain her abilities she has lost, our girls say "bring our sister back" please help to raise 30,000 for funds to send baby kylani and her parents to America for Stemcell Treatment