Kylie Darling needs you!
We are hoping to provide as many funds as possible to purchase the unfunded drugs.Canterbury
She’s 48, blonde, proud, hardworking, humble and a beautiful soul. She lights up a room but more importantly she lights up the lives of so many people.
Kylie married the love of her life Johnny only a year ago. She’s a mother to 2 beautiful children, 20 year old Meg and 14 year old Ollie. She is a daughter, sister, cousin and friend to many.
Kylie was diagnosed with incurable stage 4 metastatic breast cancer in October 2017. At the diagnosis the cancer had already spread to her liver, peritoneum, ovaries and skeletal system.
She underwent an intensive IV chemo treatment which was 6 doses 3 weeks apart and responded well. Since then Kylie has tolerated oral chemo and has been relatively stable until now.
In August 2019 Kylie’s health deteriorated and the cancer has progressed with complications affecting her heart and lungs.
Now Kylie is undergoing further IV chemo treatment for the next 12 -16 weeks, dependent on how her body tolerates the treatment. Afterwards the plan is to start on a palliative cocktail of hormone drugs, and best option currently available is Palbociclib (also known as Ibrance), this is taken in conjunction with a second drug Fulvestrant.
Palbociclib drug has had great success in stabilizing the disease and extending life. It has been described as a ‘game changer’ for women, keeping the cancer at bay for as long as possible.
As both these drugs are UNFUNDED in NZ, the cost for Kylie and Johnny will be $7,000 every month.
There is hope that both these drugs will be funded in the future but it’s likely the Palbocuclib will only be funded as a first line treatment as it has in other countries, so unfortunately Kylie will not be or would never have been eligible, as her cancer was too far advanced at diagnoses and chemo was the only option as first line treatment.
We want to provide Kylie with the opportunity to keep fighting and live life for as long as she can.
We are hoping to provide as many funds as possible to buy the required drugs.
Caroline Barr's involvement (page creator)
Friends raising money for Kylie's non funded cancer treatment-Caroline Barr & Kate Tod.
Use of funds
All funds raised will go towards non-funded treatment of Kylie’s cancer.
We have had amazing news – after the initial disappointment for the Ibrance funding, we have had the exciting news that parameters have changed and I will now be eligible for full funding of the Ibrance!!
I have new and ongoing medical costs but with the money raised to date there will be enough to help cover these initially so with much thanks we are closing the Give a Little page.
We can’t express how much your kindness has helped our family not only financially but also emotionally with navigating the last stressful 6 months.
We will be forever gratefully to our dear friends Caroline Barr & Kate Tod that have been our rocks, and the generosity from many wonderful people.
much love & thanks Kylie, Johnny, Meg & Ollie.
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This page was created on 10 Oct 2019 and closed on 4 Mar 2020.