Claire update part 2
11 August 2025…. We are not just moving, we are distributing all furniture and household stuff to friends and family and I’m putting my Aotearoa boxes in storage, then I’m going to live in my van (Dora) whilst I wait for transplant.
The plan was for me to come home, but unfortunately I can’t until I’ve had 12 heart biopsies post transplant so that plan is on hold. I so miss Aotearoa, my family, my friends, and the feeling of being home.
This week my potassium bottomed out, so I ended up in emergency.
Low potassium is a by product of diuretics to help my kidneys along… fluid retention is one of the joys of heart failure.
Whilst I approach my heart failure with humour and I try to remain relentlessly positive, a 24 hour stint of my heart being out of rhythm due to low potassium is quite frankly, exhausting and a little scary,
I’m due up to the Royal Papworth Hospital again on the 21st for another transplant appt so will keep folk posted.
Thank you again for sending me the gift of my Dad being here to organise me and the move.
I hope to pay it forward once I have a ticker that works.
Aroha, Claire