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LEUKEMIA BITES AGAIN

  • 10 weeks

      17 March 2025

    Well hamz has been my home 4 10 weeks on tuesday and I've started on phase 2 of the overall plan which isn't quite as Grim or intense and goes for a week .... but there is 6 of them with recovery time in between. Some wins.... I have put on 2kg during treatment, can now walk again 1km albeit slowly, I have knitted almost a third of the blanket and I gave discovered that the green whistle is amazing for lumberb punctures but equally they can make u say inappropriate things . ...... recovery time now ...... nga mihi

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  • 8 weeks

      4 March 2025

    8 weeks since admission to hospital and 3 weeks at the lodge. While I stll have a long hard road to travel I am lucky to still be here, thanks to those that have take time out to visit, nick, aiksa, karl and baldy, and my kids with their kids when possible... it filled my soul when often all I could do was hold your hand. To nicky n tina who have been my "constants' angels. To those that have cooked for me my thanks for the taste of home. To ailsa and Ann who have encouraged me in the long lost days and nights. Thanks to Lisa for setting up the give a little page and to those who have given. I'm going to take a few days off here to enjoy the last days b4 i head back to hospital for round two and to keep waking to build my strength and sleeping to recover from the good food n exercise. I really just wanted to say thanks x

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  • 2 weeks in the lodge

      27 February 2025

    today marks 2 weeks in the lodge and im a slowly getting stronger - its also 12 days til i head back to hopsital to do the next round of chemo. Yesterday I got to go to the Base and invest in some walking shoes as I have one pair of jandals with me - so I am supported in the daily walks, they are getting a bit longer each day and including some inclines - my calf muscles are welcome back any time! Back to the hospital for twice weeky bloods today - managing the process of shuttles / orderlies etc better, and then it is the weekend again, if anyone wants to visit before the next round let me know. Once the chemo starts again i will be really limited due to infection (again). On that I have a sinus infection but am on anti bitotics for that - yay another pills to add to the pile. Yesterday was also a trip to auckland to discuss stem cell stuff - overwhelming so am back to focussing on one day at a time

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  • This week coming week of the 24th

      23 February 2025

    Well that brings a weekend to the end. Managed abig (for me) walk outside although I forgot I had a baldy and nearly baked in the son. Ben brought brian over and it was lovely too see them both. This week brings mon and thurs blood tests and potentially an appt at aucjland hospital re a stem cell transplant. All going well I stay on r and r leave until March 11 when I get admitted again for round two. Have a good week koutou

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  • One week in the lodge

      19 February 2025

    Tommow marks one week at the lodge and thanks to endless sleeping and nourishing food I feel a little stronger. I can now walk without furniture and today managed a small flight of steps . Hospital appts are tricky coordinating shuttles orderlies and timing so I hope that gets easier with practice. All going well I may be able to have a visitor Monday avo ( must be well tho)..... warning tho..... im liable to fall asleep.

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  • 6 weeks In

      14 February 2025

    Morena, well as we approch 6 weeks since that day I went to pak n save and ended up im Waikato hospital, I am now im the cancer lodge for a r and r break before the next round of hospital based treatment. Lovely place, lovely staff and a lovely ensuited room with an opemimg window amd a view. So its about loads of rest, strength rebuilding, twice weekly hospital visits , a mental break and keeping infection free. Have a great friday everyone and thank you thank you for the very important part you have played im getting me and my whanau to this point x

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  • 09/02 update

      9 February 2025

    Ruth's Birthday week

    Morena koutou, ive woken from the fog of a couple of tuff days and am dunking biscuits in milo. The team tried new nausea medsto no avail so plan b.... this week brings a lumber puncture in the bone marrow to see how far we have come in the first cycle. And on the upside for a few days I get to eat food from the *outside* .... yesterday I scoffed a date scone far too fast ...... it appears. If my bloods hold this week I may be allowed a couple of mid week visitors.... it's a bit of a day by day thing. We'll its drac time (daily boods). My love, hugs and thank you for being there in my village x, ♥️

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  • Update from Ruth 5 weeks into treatment

      4 February 2025
    Main image

    well yesterday i joined the 'hat club'. Wasnt as bad as I thought and the nurse did a great job. The hosp/govt give you an option of hats/wigs etc so i went grey and black merino, and it was snuggly to sleep in.

    Tuesday is lumber puncture day and chemo put directly into spinal fluid so not my favorite day, but there you have it. On the upside I have ordered spaghetti on toast for breakfast - its the small things

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