Life saving surgery for Michaela age 19 who has a Brain malformation and needs to get to Barcelona.
Auckland
My name is Michaela Hope I am 19 years old , I live with my mum and younger sister in Auckland City. I have been sick now for 9 years and I have been in and out of hospital since age 10 with terrible life changing symptoms.
Some of these are:
Excruciating headaches and pain in the back of my neck
Lower back tissue swelling that causes extremely bad pain
Immense fatigue
Very bad short term memory
Loss of balance and hand eye coordination
Swallowing issues which leads to VERY scary choking when I'm eating or drinking
Bladder issues
Muscle weakness...
All of these symptoms are affecting my whole life and family and friends around me
I spend most of my time at home and if I do go out for short periods of time, this comes at a huge cost to me.
Since I was ten years old I was a medical mystery until a year ago when we found out I had a Chiari Malformation of the brain which is life threatening, we were shocked but relieved we had found an answer to a lot of my symptoms.
We found out recently I also have tethered cord and retroflexed odontoid and the health system here in New Zealand can not help me or do the life saving spinal surgery I need. This surgery is not a cure but it will help to decrease my symptoms and eliminates the risk of sudden death.
The only place in the world that does the "Filum system" which is the surgery I need is in Barcelona Spain. The full surgery plus the essentials I need for surgery will cost us approximately 80,000.
Of course there is no way on a sickness benefit I could fund myself to get there and my family is not wealthy.
This illness is progressive and is progressing fast and if I don't get this surgery soon my symptoms could become permanent.
Please donate today every little bit is appreciated it means everything to me, and my life is counting on it. Please Help me to get to Barcelona for my life saving surgery.
Thankyou so much
Michaela Hope.
I want to help raise funds to get my daughter the life saving surgery she requires
Money will be used for surgery, flights, accommodation, transport, and any other essentials related to the surgery for me and my mum (support person), any excess money over 80,000 will be used for other health costs surrounding my Chiari malformation.
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