From Thomas and Belle x
2 April 2025
"We would like to thank everyone for all the support we have received over the past 6 and a half weeks.
Since the day Belle had to be rushed into hospital for pre-eclampsia on the 13th of February the love and support has been felt from all directions. Our beautiful little man was born on the 18th of February at 1153. He captured our hearts and made us both feel so full and complete from the moment we first saw him. The coming 5 weeks became a Rollercoaster of emotions as he began to struggle with breathing and getting fluid into his lungs testing was done and the doctors found he had 4 major heart complications and he was also diagnosed with Cornelia De Lange syndrome. The combination of his syndrome and the heart issues made it so the heart surgery he needed was not possible. For his final week of life we made sure that he felt loved every moment and spent valuable time with him creating memories.
On Tuesday the 1st of April his ventilator was removed and he was able to be given a bath without tube's or wires connected to him. He then got to go into the domain for a family picnic with everyone who cherished him. He fought hard to stay with us but passed in his dad's arms and having his head stroked by his incredible mum at 9:40pm."
Thank you for all your love and support. Please take a moment silence and give extra hugs to those you love x