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Please help my little girl, Lily-Grace, develop.

Closed Cause page created in the Kiwi Kids category by Warner Davies for "Lily-Grace"

  • $745.00 donated
  • 4 generous donors

My little girl was born 3 years ago with an extremely rare chromosomal disorder, called Trisomy 9 Mosaicism. Lily is a miracle child.

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Family Support Sick Kids Disability

Lily-Grace was born with an extremely rare chromosomal disorder, called Trisomy 9 Mosaicism. The condition is so rare that there are only around 170 cases known today world-wide. That's about 1 in forty million by this Dad's calculations! The fact Lily is even with us is a miracle. Her body went into cell repair in utero and despite the condition she is a little miracle defying negative prognosis by some professionals. Lily is walking and talking which is amazing. But she has needed ongoing healthcare. ie. (4 times with pneumonia before her tonsils were removed). Thank you for the support we received on my wife's previous Givealittle page over the last couple of years. This page will help Lily going forward.


Use of Funds:

The funds raised for Lily are to help get a best start in life as she has developmental delays. Lily's Mum gave up work to care for Lily, so this Dad is the sole bread winner. We need help with the ever increasing cost of living in Auckland. We need help keeping Lily in her home, which is warm and dry and safe. Lily is also on constant medicine and therapies that are not subsidised. The more help we get in the early years as Lily's brain develops the better for her long-term.

Page created by:

Warner Davies

Individual
Auckland

I am Lily's Dad and I love my little girl dearly. We lost our first child at 10 weeks before Lily and we don't want to lose her! We are also old parents, so this is our only opportunity to fully support this amazing child. Please do look at the Youtube Video I made. We really appreciate your help.

All funds raised benefit:

Lily-Grace

Funds will be paid to a verified bank account of Amanda & Warner Davies on behalf of Lily-Grace.

  • $745.00 donated
  • 4 generous donors

$745 donated

Open goal

  Closed

This cause page was created on 13 Apr 2017 and closed at 23:59 NZST (UTC +12:00) on 30 Apr 2019.

Donor Confidence Key  

  • Givealittle moderated
  • Donor validated
  • New Zealand registered charity
  • Eligible for tax credit

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