Main image

Please help my little girl, Lily-Grace, develop.

Closed Cause page created in the Kiwi Kids category by Warner Davies for "Lily-Grace"


$745 donated

Given by 4 generous donors in 2 years

Share   Closed

My little girl was born 3 years ago with an extremely rare chromosomal disorder, called Trisomy 9 Mosaicism. Lily is a miracle child.

Main image

  Auckland Family Support Sick Kids Disability

Lily-Grace was born with an extremely rare chromosomal disorder, called Trisomy 9 Mosaicism. The condition is so rare that there are only around 170 cases known today world-wide. That's about 1 in forty million by this Dad's calculations! The fact Lily is even with us is a miracle. Her body went into cell repair in utero and despite the condition she is a little miracle defying negative prognosis by some professionals. Lily is walking and talking which is amazing. But she has needed ongoing healthcare. ie. (4 times with pneumonia before her tonsils were removed). Thank you for the support we received on my wife's previous Givealittle page over the last couple of years. This page will help Lily going forward.

Warner Davies' involvement (page creator)

I am Lily's Dad and I love my little girl dearly. We lost our first child at 10 weeks before Lily and we don't want to lose her! We are also old parents, so this is our only opportunity to fully support this amazing child. Please do look at the Youtube Video I made. We really appreciate your help.

Use of funds

The funds raised for Lily are to help get a best start in life as she has developmental delays. Lily's Mum gave up work to care for Lily, so this Dad is the sole bread winner. We need help with the ever increasing cost of living in Auckland. We need help keeping Lily in her home, which is warm and dry and safe. Lily is also on constant medicine and therapies that are not subsidised. The more help we get in the early years as Lily's brain develops the better for her long-term.

Other page links


Latest update

Update image

A Little Video about the Journey so far...  14 May 2017

About 3 months ago I made this little video to show how Lily has soldiered on these last three years.

Read 3 more updates


Latest donations

  • Gabrielle Stewart

    Gabrielle Stewart on 08 Jun 2017

    $25

    You are one amazing little girl and you have an amazing Mummy and Daddy, I did met you Lily-Grace in the park

    $25

    • Warner Davies

      Was lovely to meet you Gabrielle. Hopefully we'll see you again there! Thanks for this donation. Very much appreciated. Love from Team Lily. :-)

  • Guest Donor

    Guest Donor on 14 Apr 2017

    $500

    $500

    • Warner Davies

      Thank you very very much for this most generous donation. We really really appreciate this. God bless you, from Team Lily. :-)

  • Rob, Kim & Eloise

    Rob, Kim & Eloise on 14 Apr 2017

    Private

    We love you precious Lily-Grace, all the way from Nth Queensland ♡ We hope this small gift blesses you, your mummy and daddy as much as possible. Happy Easter with all of our love !! xx

    Private

    • Warner Davies

      We love you all too! Thankyou very much for the generous donation. That's very kind. Blessing from us. Come and visit again! :-)

  • Private Donor

    Private Donor on 13 Apr 2017

    Private

    Private


Who's involved?

Amanda & Warner Davies's avatar
Paying to a verified bank account of Amanda & Warner Davies on behalf of Lily-Grace

Page Moderated The page has been checked by our team to make sure it complies with our terms and conditions.

Got a question for the page owner?

Ask one here

Any concerns?

Report this page
This page was created on 13 Apr 2017 and closed on 30 Apr 2019.
$745 donated

Given by 4 generous donors in 2 years

  Closed Share
Share
Share a link to this page to help spread the word

  Facebook

  Twitter

  Email

  Copy Link

  Embed

×