Looking Out for Luca

In March this year, Teresa and Jacob welcomed their second child, a beautiful baby girl named Luca into their family. Since birth, she has been in and out of hospital and after months of testing, a diagnosis of Bohring Opitz Syndrome was confirmed.

BOS is an incredibly rare genetic condition effecting approximately 150-200 people worldwide. She is the only child in NZ like her and she is incredibly special but this makes it difficult for the professionals to understand her needs and the care she requires. The conditions likelihood of making it past childhood are very low and there are also a number of additional challenges that Luca faces.

This has been incredibly challenging on Teresa, Jacob, Luca's big brother Weston and especially for Luca. Over the next few months, Luca is going to have 3 high risk surgical procedures to try to tackle her feeding issues and reflux, as well as major skull reconstruction surgery.

While the future for wee Luca is uncertain, she has the most incredible family and friends surrounding and supporting her. This beautiful family is doing everything they can for their little girl and any love or financial support is hugely appreciated. Thank you.