Relieving the financial stress off Madi's Mum as she will be taking time off work to be with Madi
Madi was diagnosed with SJIA (Systemic Juvenile Idiopathic Arthritis) in December 2020 after a lot of admissions to hospital from the age 5 months old. Madi turned 2 years old on the 26th April. Only 3% of Juveniles diagnosed with Juvenile Arthritis have this form of the disease. Some days she can not even stand having clothes on as her skin is sore. 8 weeks ago Madi started a low dose chemo drug to try and stop the disease from attacking her, this was added to other medications including a high does of steroids. This has not been as successful as they had hoped and on Tuesday the 27th April (day after her 2nd birthday) Madi will be admitted to hospital for preparation to start another low dose chemo drug which needs to be given by IV. She will have a PIC line inserted as they are anticipating her being on this one for 6 months or more and the PIC line will make it easier for administering the new medication.
I am Madi's nana.
Any funds raised will be used to buy anything for Madi that will help her with this horrible, life long disease. i.e new mattress. And also to help with any expenses and bills that Makayla is finding hard to cover due to having to take time off work.
Page closing 8 October 2021
I have extended the closing date of the page till 25th December. This is because we really need to raise some more money to be able to get Makayla a reliable car for her and Madi.
Madi needs to go to the hospital on a weekly basis for dressing change and treatment, and sometimes on other occasions when this horrible disease decides to throw a curve ball. Anything helps and is very much appreciated.