Help Melissa with her health

I’ve been living with ME/CFS for many years now. This has absolutely destroyed my life and left me struggling to work, study, socialise, parent my daughter, participate in leisure activities or even to do basic everyday activities. I can't even watch tv anymore due to severe vision symptoms. I am bedridden most the time, as any activity exacerbates my symptoms. I never know what part of my body is going to malfunction next. Doctors aren't very knowledgeable about ME/CFS, and the NZ public health system does not cover ME/CFS related medical care. As a result, I've had no choice but to research my own illness and try to figure it all out myself, with the help of online support groups. NZ has a private ME/CFS specialist, and she's much needed for diagnosis and general treatments; however, I also need to rule out underlying causes, comorbidities and ME subsets - most tests are unavailable through NZs health system, but are mentioned by specialists overseas.

My life is slipping away. I've been mostly absent from my child's life for 4 years. It's a living nightmare. I don't want to lose any more precious years to this illness. I want my daughter to have her Mum back. I don't want more years to slip by and to find myself still in bed, my skin ageing, my youth having passed me by, with an entire life unlived, and to find I've missed out on my daughter's entire childhood. Nor do I want to one day die with the regret of knowing I didn't do everything I possibly could to fix my health