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💗 My journey with endometriosis, hysterectomy and Fowler’s syndrome

  • Sacral neuromodulation

      10 November 2026

    Sacral neuromodulation (SNM), also known as a bladder pacemaker or sacral nerve stimulation, is a minimally invasive medical therapy that uses mild electrical impulses to reset the communication signals between the brain, bladder, and bowel.

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  • Fowlers syndrome ❤️

      10 November 2026

    Unfortunately, I can no longer self-catheterise, so I've now had to have a suprapubic catheter (SPC) fitted to drain my bladder through my lower abdomen. I've also recently been back in hospital with an infection, so I'm now on antibiotics and hoping that clears things up.

    The next step in my treatment is hopefully a bladder pacemaker, officially called sacral neuromodulation (SNM). It's a small device implanted under the skin that sends gentle electrical signals to the nerves that control bladder function. The hope is that it will help improve my bladder function and, fingers crossed, eventually reduce my reliance on the catheter.

    Unfortunately, because I've been diagnosed with Fowler's syndrome, this next step in treatment isn't funded, meaning the financial burden falls on me and my family. This is something I'm hoping to pursue to give myself the best chance of improving my bladder function and getting some normality back into my life.

    Any donations, no matter how big or small, would be incredibly appreciated. Your support means more than you know, not just to me but to my family too. Thank you from the bottom of our hearts for your kindness, love and support. ❤️

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