Nina's Journey, The final push

Two weeks ago we were told that Nina needs to have both of her hips operated on. The recovery from surgery to get back to the strength and ability of pre surgery level can take between 12-30 months. Because of the long recovery time, and the lack of guarantee that further CP related deformities wont happen to Nina's body over that time, we have removed Nina from the SDR waiting list. The decision was made after talking with both her surgeon in Christchurch and with Dr Park, the surgeon in America who does SDR. Dr Park has said that removing Nina from the list is a good decision and that he will be happy to re evaluate Nina in a couple of years to see if SDR will still be suitable for her. We are incredibly disappointed that things have gone this way, but unfortunately that is the nature of CP. We will be putting the money we have raised so far towards intensive physio therapy. The results we got from TheraSuit last year were amazing, and we want to get Nina her strength, ability and level of independence back as soon as possible so we can look into treatment again and so Nina can continue enjoying her childhood. We want to thank everyone for all of the amazing support we have received on this journey so far. Finding out about Nina's hips has shifted the goal posts for us but we have not given up our fight for Nina to have a better long term quality of life. We just have to wait to a bit longer and work a bit harder to get to our goal. Thank you all once again for your support, with love from Nina's family.