Olivia Harper Price

The following photos are of my now 7-month-old daughter who has craniosynostosis caused by type 2 Pfeiffer syndrome.

My partner and I lost our jobs to look after her. We are both actively looking for work but it is very hard with her needs. At 12 weeks she had a major and radical surgery that was needed to improve her quality of life.

My beautiful daughter will need two more surgeries and an abundance of specialist equipment as we got the latest update from her neurosurgeons and it invlolves removing her forehead and eyesockets for reshaping.

We need money for; travel, a special car seat, a cot, a pram, special clothing that doesn’t put stress on her head, learning aids, non-funded medical creams etc.

We also need a safe and reliable vehicle to transport her to the hospital for appointments and emergencies such as apnea (she’s already gone blue on us).

This has been so hard on our young family trying to give her the world without the ability to give it to her.