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Our boy deserves to live like a normal child.

  • Treatment started ❤️🙌🏻

      7 October 2023
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    Our treatment consists on:

    15min bath with additives in the morning

    Drink morning supplements

    Apply all creams just after bath

    Apply all creams every 2h throughout the day

    15min bath with additives in the evening

    Drink evening supplements

    Apply all creams just after bath

    Apply creams before bed

    Yes, it is quite full on but we are determined to help this little men out, and determined we don’t want him to be on “drugs” for life 😞

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  • Order for Second Month of Supplies

      7 October 2023
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    Second order of supplies done already!

    US$1416 = ND$2513.55

    We also had a tax bill of NZ$592.46 of Customs Duty for our first delivery.

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  • Yay. They have arrived!

      7 October 2023
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    Supplies have arrived on Thursday the 5th and we have started treatment. Thanks to all of you who have been praying, thinking of us and those who have been generous donating too.

    May God Bless You All!

    Expectation for this treatment is for us to start seeing results within around 3 months where we will be able to taper him down on steroids (both topical and oral) and wean off.

    But again, every patient reacts different, so let's hope Otavio heals faster than the expected, and we will praise God for it!

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  • First Order of TCM regimen done

      6 September 2023
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    We have just placed 1st order of TCM regimen today. See photo attached for costs of supplies expected for the first month (in USD) + shipping expected USD90 = USD1747 = NZD2968.66

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  • First Appt with Dr Li on 03/09/2023

      6 September 2023

    We have had our first appt with Dr Li on Monday the 3rd of September.

    Waiting for protocol to come through as well as list of medications to be ordered.

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    • 30/09/2023 by Deirdre Brown

      Hi. My grand daughter was really bad like this to. We use to give her oatmeal cool baths when it was at its worst. It would help cool her skin, stop the itch and keep it moist.

  • Update 29-08-2023

      29 August 2023
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    This is such heartbreaking to see. According to Dermatologist prescription, use oral steroid full dose for 7 days then start decreasing amount to 1/2 dose. After two days decreasing dose, we went sort of to square 1 with a really rough night, scratching from head to toe and had to go back to wet wraps to soothe and avoid the cycle scratching/bleeding/oozing.

    Heartbreaking when we are putting wet wraps on in the middle of the night and he screams saying "please mum I don't need this anymore, take it off, please pink promise you will take it off now 😭💔

    Photo from this morning ❤️

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  • Two weeks for our 1st appt with Dr Li 🤞🏻

      21 August 2023
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    First of all…thank you so much to all the generous people that have donated so far.

    Otavio got a bit worse last week so we are back on another course of oral steroids to keep him pain/itch free till we see Dr Li 🙌🏻

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