Since Azalia's diagnosis a month ago, Kelvin and Sheree have been in and out of hospital numerous times. Azalia has suffered some severe seizures where they have noticed a huge regression in Azalia's abilities. Azalia is now only to eat soft foods (which she shows very little interest in eating) and is more or less fully tube fed now. Her walking ability has decreased dramatically and it is incredibly worrying allowing Azalia to move around with her decreased stability. Azalia is now only expected to live another 2 years at most... But miracles do happen.
Unfortunately the government deem children under 5 to need a lot of care from their parents in any circumstance, so there is very little funding available to help take care of Azalia.
Azalia is still some days full of energy and loves to run around and swing on her rope ladder and sit on her trike. Her favourite thing to do is watch Blaze and the Monster Machines and Paw Patrol on TV where she giggles away.
Due to Azalias increasing needs and Sheree having to give up her job, the family is in a tight spot financially. So any little bit helps. The money goes directly to the family.
Sheree has started a blog called Azalia's Journey on Facebook if you are interested in following.