Our Miracle Heart Baby KARMADY FUNDRAISER

We are having a fundraiser to raise money to help with travel and living costs and mainly to provide Karmady with what she needs post surgery and for the future battles yet to come. Heres the story . It all started when the pregnancy stick showed a positive result!!! We were so excited as this was our one and only chance to have a baby together as we were both over 40. At 20wks my bloods came back with a one in 5 chance of Down Syndrome, but I decided I didnt care, this was our one and only chance and I was not going to even contemplate termination as we had wanted a baby for many years, but life happened!!! And I wasnt gping to terminate a life on the chance they might be different, different is also amazing!!!, so at about the 25wk mark we had short limbs appearing on the scan combined with IUGR (baby was way to small) so our first diagnosis was Dwarfism, but we could handle that, it would just mean our wee poppet would be smaller for a whole lot longer, then our 30wk scan appointment came at the Auckland Foetal Unit, and results were not good, we had a congenital heart disease baby that may have many underlying issues and it may not be worth continuing the pregnancy due to so many issues, so were given the option to terminate at 30 wks and were sent for an emergency amniocentesis which i absolutely dreaded!! I was against termination from the get go so it wasnt an option for us, but the amniocentesis came back with Trisomy 21 again I wasnt bothered, as long as she is born healthy, but unfortunately she had stopped growing so had to keep her inutero as long as we could, after all we have been through, we can do this, then the day came for our scan THE 19th October 2017, it was bad, her heart was erratic and bloodflow was in reverse, so off to the ER for a classic cut emergency c-section!! I was terrified!!! This was it, is my baby going to make it? In a few minutes it was all over and she was born at 4:15pm weighing in at 1280g, so now the journey really began, different hospitals and doctors and nurses for the first 5 wks, i never got to stay the night with my baby until she was over a month old but , i was there every single day, now we are closing in on her open heart surgery, which is the first week of April, and all monies raised will be going towards travel expenses, appointments and anything to help with the improvement of her muscle tone and future battles