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Our Tap Dance Queen Needs Life Saving Surgery

$33,940 of $180,000 goal
Given by 213 generous donors in around 10 months

Helping a teenage live again

Blenheim, Marlborough

Our fabulous tap dancing queen has a life threatening condition - Elhers-Danlos Syndrome (EDS). This year she has also been diagnosed with rare syndromes collectively known as Abdominal Vascular Compression Syndromes (AVCS).

AVCs are a group of rare, serious, life threatening conditions which has resulted in abdominal vascular compressions. This means Tyler is living in agonising pain, bed bound and fully dependent on a feeding tube.

Tyler, once the vibrant force at the Tap Dancing Studio, devoted to teaching and performing, finds herself unable to pursue her greatest passions in life. Her dedication to inspiring fellow students in the Tap Studio, showcasing unwavering enthusiasm and courage despite illness, has taken a somber turn. Currently, she grapples with severe illness, a stark departure from her usual lively presence.

Shiree Murray's involvement (page creator)

My daughter dances with Tyler and they are best friends.

Use of funds

Assisting Tyler and her mother Lorissa's journey to Germany this covers all costs, flights, accommodation and living costs. Our main goal is ambitious; any funds, even if not reaching the full amount, contribute to covering operation costs.

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Latest donations

Guest Donor
Guest Donor on 02 Jul 2024
$120
Holly
Holly on 31 May 2024
$20
Courtney
Courtney on 24 May 2024
$20
Rachael
Rachael on 08 May 2024
Good luck Tyler
$30
Vicki T
Vicki T on 05 May 2024
$50

Who's involved?

Shiree Murray's avatar
Created by Shiree Murray
Lorissa Barnett's avatar
Paying to a verified bank account of Lorissa Barnett on behalf of Tyler Barnett
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This campaign started on 3 Jan 2024 and ends on 12 Dec 2024.