Helping a teenage live again
Blenheim, Marlborough
Our fabulous tap dancing queen has a life threatening condition - Elhers-Danlos Syndrome (EDS). This year she has also been diagnosed with rare syndromes collectively known as Abdominal Vascular Compression Syndromes (AVCS).
AVCs are a group of rare, serious, life threatening conditions which has resulted in abdominal vascular compressions. This means Tyler is living in agonising pain, bed bound and fully dependent on a feeding tube.
Tyler, once the vibrant force at the Tap Dancing Studio, devoted to teaching and performing, finds herself unable to pursue her greatest passions in life. Her dedication to inspiring fellow students in the Tap Studio, showcasing unwavering enthusiasm and courage despite illness, has taken a somber turn. Currently, she grapples with severe illness, a stark departure from her usual lively presence.
My daughter dances with Tyler and they are best friends.
Assisting Tyler and her mother Lorissa's journey to Germany this covers all costs, flights, accommodation and living costs. Our main goal is ambitious; any funds, even if not reaching the full amount, contribute to covering operation costs.
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