Pam urgently needs life-saving surgery overseas

$44,896 of $180,000 goal
Given by 420 generous donors in 9 weeks

Give Pam a second chance at life

Athenree, Bay Of Plenty

Pam, husband Jon and boys Benny (8yrs) & Ollie (6yrs) are a family from the Bay of Plenty. Prior to Pam becoming severely unwell in August 2021, she was active, adventurous, had a wonderful small business and her whole life ahead of her.

Now, in March 2024, after a grueling 2.5yrs and counting, Pam is fighting for her life and finally has some answers.

Pam has Ehlers-Danlos syndrome (classical; cEDS). EDS is a genetic connective tissue disease that affects her entire body. Pam is severely affected and suffers from co-occurring conditions, one of which is a confirmed diagnoses of the rare Abdominal Vascular Compression Syndromes (AVCS).

Specifically, Pam suffers from NCS (Nutcracker Syndrome), MTS (May-Thurner Syndrome), MALS (Median Arcuate Ligament Syndrome) and SMAS (Superior Mesenteric Artery Syndrome).

EDS and AVCS are extremely misunderstood in NZ and there is little to no treatment for it here. Health insurance is also of no use.

Pam battles daily with debilitating abdominal & pelvic pain, fatigue, migraines, tinnitus and nausea to name a few. She is malnourished and has been tube-fed via different methods since April 2022. Pam's quality of life is so reduced, she can barely make it out of bed these last few months. She is deteriorating quickly.

The only option is to undergo life-saving surgery in Germany, which comes at a huge cost.

For her full story, please search Facebook for "Pam’s Positively Full Life", as the space available in this description is very limited.

Renee Taylor's involvement (page creator)

Pam is my sister

Use of funds

The cost of surgery, immediate after-care overseas, travel costs, further medical costs when home in NZ etc. Our main goal is ambitious; any funds, even if not reaching the full amount, helps immensely.

Read more

Latest update

Update image

Further funds hopeful, and Pam's daily battle  21 May 2024

Pam & Jon would also like to share they have applied to withdraw under hardship their retirement (superannuation) funds from their time living in Australia. The paperwork is monstrous, and very specific. They've finally gathered it all and submitted, so now the up to 4-week wait begins to see if they are successful.

If they are, while this will mean Pam will be able to undergo surgery this year, it does put them under huge financial pressure for the rest of their (and their kids) lives. Fundraising is still essential, so we will keep going for as long as we can and even after surgery, if required.

We still have incredible offers of donations/products/services/vouchers etc. from businesses and with fundraising becoming a full time job for Jon and some other family members, we simply can't manage it all at once, so we will need to spread it out a little more. Or, if you are someone with capacity to run your own fundraising effort for Pam, we are so grateful. We are more than happy to offer photos/flyers that we've had previously created.

Pam is still getting worse, she is really struggling with the pain and every day is more challenging than the last. But she keeps her spirits high, she puts on a brave face, her "mask", for her boys, her family and herself. Just know that under it all is pain and other horrific symptoms most of us cannot fathom. We are all working hard to make this surgery possible and thank you all for sharing and keeping Pam in your thoughts - xoxo, Renee

Share this update

Read 6 more updates

Read more

Latest donations

Rita
Rita 15 hours ago
$20
Renee Taylor

Thank you very much for your kind donation ❤️

Renee Taylor
Barbara
Barbara 1 day ago
$50
Renee Taylor

Thank you very much for your kind donation ❤️

Renee Taylor
Susanne
Susanne 5 days ago
Wishing you all the best…. Mrs Susanne Lee
$1,000
Renee Taylor

Wow Susanne, thank you so very much for your generous donation, we are so grateful! Your support means more than you know xoxo

Renee Taylor
Guest Donor
Guest Donor 6 days ago
I wish you all the love. Hope you get through this. I am praying for your speedy recovery :)
$10
Renee Taylor

Thank you very much for your kind donation ❤️

Renee Taylor
Michelle
Michelle 6 days ago
$10
Renee Taylor

Thank you very much for your kind donation ❤️

Renee Taylor

Who's involved?

Renee Taylor's avatar
Created by Renee Taylor
Pamela Coburn's avatar
Paying to a verified bank account of Pamela Coburn
Page Moderated
The page has been checked by our team to make sure it complies with our terms and conditions.

Help Fundraise

You can help fundraise to have your own page that raises money directly for the beneficiary.

Gallery

Any concerns?

Report this page
This campaign started on 25 Mar 2024 and ends on 25 Sep 2024.