Pam urgently needs life-saving surgery overseas
Give Pam a second chance at life
Athenree, Bay Of Plenty
Pam, husband Jon and boys Benny (8yrs) & Ollie (6yrs) are a family from the Bay of Plenty. Prior to Pam becoming severely unwell in August 2021, she was active, adventurous, had a wonderful small business and her whole life ahead of her.
Now, in March 2024, after a grueling 2.5yrs and counting, Pam is fighting for her life and finally has some answers.
Pam has Ehlers-Danlos syndrome (classical; cEDS). EDS is a genetic connective tissue disease that affects her entire body. Pam is severely affected and suffers from co-occurring conditions, one of which is a confirmed diagnoses of the rare Abdominal Vascular Compression Syndromes (AVCS).
Specifically, Pam suffers from NCS (Nutcracker Syndrome), MTS (May-Thurner Syndrome), MALS (Median Arcuate Ligament Syndrome) and SMAS (Superior Mesenteric Artery Syndrome).
EDS and AVCS are extremely misunderstood in NZ and there is little to no treatment for it here. Health insurance is also of no use.
Pam battles daily with debilitating abdominal & pelvic pain, fatigue, migraines, tinnitus and nausea to name a few. She is malnourished and has been tube-fed via different methods since April 2022. Pam's quality of life is so reduced, she can barely make it out of bed these last few months. She is deteriorating quickly.
The only option is to undergo life-saving surgery in Germany, which comes at a huge cost.
For her full story, please search Facebook for "Pam’s Positively Full Life", as the space available in this description is very limited.
Renee Taylor's involvement (page creator)
Pam is my sister
Use of funds
The cost of surgery, immediate after-care overseas, travel costs, further medical costs when home in NZ etc. Our main goal is ambitious; any funds, even if not reaching the full amount, helps immensely.
Other page links
Latest update
A second update in as many days 🥰 10 July 2024
Today we reduce our Givealittle goal to $100k, because with private donations we are now only $22,500 short of the overall $180k goal!
I know we go on and about how grateful we are. But we just have no other words to really express it 🥹
We are incredibly grateful for the continued support from the general public, but also especially from the small businesses that have created products just for Pam with all proceeds going to Pam, for those that created and ran their own fundraisers for Pam, and those who have offered their services to help us out in a different way.
We have now ✨fundraised✨ everything we need for the first few weeks in Germany! 😱🤯
The remaining goal of $22,500 would be used for the last 4 weeks in Germany which includes accommodation, travel to Leipzig, physio, medications, other treatments during recovery and the final scan which is $8,500 on its own.
Sincerely, we want to thank you all for donating and sharing Pam’s story, and want to be open about what the money is going towards. We have lowered the GAL goal previously when we have fundraised in other ways, such as through bank deposits and other fundraisers like our raffles that you don't get to see.
Bring on Germany! 🇩🇪
Latest donations
Thank you so much Paul for your generous donation ❤️
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