Pam urgently needs life-saving surgery overseas

$29,511 of $180,000 goal
Given by 356 generous donors in 27 days

Give Pam a second chance at life

Athenree, Bay Of Plenty

Pam, husband Jon and boys Benny (8yrs) & Ollie (6yrs) are a family from the Bay of Plenty. Prior to Pam becoming severely unwell in August 2021, she was active, adventurous, had a wonderful small business and her whole life ahead of her.

Now, in March 2024, after a grueling 2.5yrs and counting, Pam is fighting for her life and finally has some answers.

Pam has Ehlers-Danlos syndrome (classical; cEDS). EDS is a genetic connective tissue disease that affects her entire body. Pam is severely affected and suffers from co-occurring conditions, one of which is a confirmed diagnoses of the rare Abdominal Vascular Compression Syndromes (AVCS). Specifically, Pam suffers from Nutcracker Syndrome and May-Thurner Syndrome (possibly more).

EDS and AVCS are extremely misunderstood in NZ and there is little to no treatment for it here. Health insurance is also of no use.

Pam battles daily with debilitating abdominal & pelvic pain, fatigue, migraines, tinnitus and nausea to name a few. She is malnourished and has been tube-fed via different methods since April 2022. Pam's quality of life is so reduced, she can barely make it out of bed these last few months. She is deteriorating quickly.

The only option is to undergo life-saving surgery overseas (Europe), which comes at an eye-watering cost (quoted approx. $180k for surgery alone).

For her full story, please search Facebook for "Pam’s Positively Full Life", as the space available in this description is very limited.

Renee Taylor's involvement (page creator)

Pam is my sister

Use of funds

The cost of surgery, immediate after-care overseas, travel costs, further medical costs when home in NZ etc. Our main goal is ambitious; any funds, even if not reaching the full amount, helps immensely.

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Latest update

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Part 3 - FUNdraiser Beats by Bingo in Matamata flyer & Pam's surgery  9 April 2024

The flyer is attached to this update, sorry I can't put more than one image on each update.

Now onto an update of Pam’s surgery journey. After hours and hours of research into the different options available (2-3 surgeons that we’re aware of), Pam has decided Germany is best suited to her. All recommendations point to ultrasound scans first by Prof Thomas Scholbach, the “gold standard” of this type of scan in the world, and he is located in Leipzig, Germany. The surgeon she has chosen, Dr Sandmann, highly regarded as the best in his field and has been doing these surgeries the longest, dealing with all types of AVCS, is located in Dusseldorf. He and Prof Scholbach work closely together. The travel will be brutal on Pam regardless, but to stay within the same country and area of Europe will be just that little bit easier for her. She is in talks with both of these medical professionals, so progress is being made.

Thank you again everyone for your support, please keep sharing Pam’s story and jump on the Facebook page to keep updated 😊

With Love, Renee xoxo

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Latest donations

Jacarandarabbits
Jacarandarabbits 14 hours ago
Hope you can get relief in Europe
$50
Renee Taylor

Thank you very much for your kind donation ❤️

Renee Taylor
Ken
Ken 1 day ago
We both wish you well in your quest for a good outcome after your surgery. Keep up the good fight.
$50
Renee Taylor

Thank you very much for your kind donation and supportive words Ken! ❤️

Renee Taylor
Ben
Ben 2 days ago
$40
Renee Taylor

Thank you very much for your kind donation ❤️

Renee Taylor
Ella
Ella 2 days ago
Saw your story in Platter Board café, this isn't much but hope it can help even a bit. You can do this. Ella
$15
Renee Taylor

Thank you very much for your kind donation and encouraging words Ella! ❤️

Renee Taylor
Elaine
Elaine 3 days ago
Good luck with everything
Private
Renee Taylor

Thank you very much for your kind donation ❤️

Renee Taylor

Who's involved?

Renee Taylor's avatar
Created by Renee Taylor
Pamela Coburn's avatar
Paying to a verified bank account of Pamela Coburn
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This page was created on 25 Mar 2024 and closes on 25 Sep 2024.