Patrick kids need help

2yrs ago my girls starting having trouble breathing, would pass out randomly and suffered extreme fatigue. After many tests the doctors had to give them blood transfusions and iron infusions (multiple iron infusions over last 2yrs). It has helped them but hasnt found out what is causing it. So abt 6months ago we took the kids to a private specialist who is running more tests and trying to help them instead of just putting a bandaid over the problem. At this stage she thinks they have a form of von willebrand disease (a type of hemophilia). With all the tests and travellings 4hrs to get tests done it's taking a huge toll on our finances and we have found out there's no help until we know what is wrong and by that time it will be to late. So I'm asking for help so I can get my kids the best care. Public system has been useless so we had to go private.