The Phoenix Rises Treatment Fund

$26,239 donated
Given by 210 generous donors in around 4 months

Phoenix has severe spastic quadriplegic cerebral palsy and we are determined to find a brighter future for our little superhero.

Auckland

Phoenix suffered from a lack of oxygen in the womb at some point and sustained severe wide spread damage to his brain. We were told he will never walk or talk.

He has little to no purposeful use of his arms or legs, has poor trunk control, limited head movement and is fed by a mic-key button directly into his stomach as his swallow is not up to a safe standard. He suffers from epilepsy as a result of his brain injury and we currently (touch wood!) have this under control with the help of medication. He does not speak and makes limited sounds. When looking at all of that, his future seems pretty grim!

But he is ALIVE. His bright eyes and his beautiful smile tell us he is awake and stuck in this little body that doesn't work for him. We are committed to try everything under the sun that may work for him and stem cell therapy is one of those things. We do the conventional therapies, we do home therapy and after hearing first hand how stem cell therapy is helping other children, we feel we MUST try this as well.

In 2013 we took Phoenix to the Duke University to have his own cord blood reinfused by one of the pioneers in this field, Dr Kurtzberg. We saw some small but exciting changes in a short space of time after the infusion so we are excited to give this another go. As there is a finite amount of his own cord blood, we have looked into other treatment centres offering other types of stem cells.

Phoenix has been approved for a 25 day treatment in September which will include not only the umbilical cord blood stem cell (UCBSC) injections, but a comprehensive rehabilitation program that may include physical and occupational rehabilitation, aqua-therapy, acupuncture, massage, hyperbaric oxygen therapy and transcranial magnetic stimulation.

Once we return home, we will continue with our own home therapy programme helping to get those new cells up to speed with how his body SHOULD be working.

This entire trip will cost $50,000. It's a lot to raise in a short amount of time but we are determined to do it.

We thank you for your love and support of our little boy. His name is Phoenix, and he WILL rise. xx

Arna Johnson-Suttie's involvement (page creator)

"The love of a parent for their child is undeniably the strongest emotion in the human soul."

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Latest update

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3 News Tonight  2 August 2015

Thank you to Kim Vinnell for taking the time to tell our story. We really appreciate it! x

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Latest donations

Richard
Richard on 07 Nov 2015
$110
Guest Donor
Guest Donor on 22 Sep 2015
Our thoughts and best wishes are with you all. Emily and Paul.
Private
The Fight Centre
The Fight Centre on 17 Sep 2015
All the best Phoenix and the Sutties!
$700
Bulldog Gym Australia
Bulldog Gym Australia on 15 Sep 2015
All our love and best wishes from everyone at Bulldog Gym Australia.
$1,350
Guest Donor
Guest Donor on 12 Sep 2015
$50

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Created by Arna Johnson-Suttie, paying to a verified bank account of Arna Johnson
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This page was created on 27 Jul 2015 and closed on 30 Nov 2015.