Please help Adam battle a rare genetic disease

Hi David, I came across the article about Adam on Stuff. He is very cute! I hope you don't mind me contacting you directly. I am a professor at the University of Otago researching CdLS and 'cohesinopathies'. While I am well connected with international scientists and clinicians who work on CdLS (especially through CdLS USA), the condition is so rare in NZ that I don't know who here might be interested in our work. If you would like, you can look me up at www.otago.ac.nz/csdg and if you're interested in finding out about our research please do get in touch. Best wishes, Julia.