Cheryl asks
Hi Victoria, I know Marcus, my son was successfully weaned in Austria where he trained and worked. My son also has down syndrome, well if you want to chat to a parent that has been through this treatment Feel free to contact me you should have my details via the donation page. We had to do a lot of fundraising too it's a big ask but we got there.
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Emily asks
Hi Victoria! I am sorry to hear of your difficulty with Levi's feeding. I wanted to let you know I am a feeding therapist available in NZ. I have 20+ years experience with complex needs, and 5 years focused on feeding therapy for complex needs. I have helped dozens of kids like Levi tube wean. I see children virtually in NZ and overseas. I can put you in touch with other families I have helped with tube weaning and feeding disorders. For more information about my work: www.myfeedingcoach.com and www.goodbeginningswellness.com
Victoria
Thanks Emily, Levi is an extremely complex case so he definitely needs to be weaned by a full multidisciplinary team including his Dr who is a pshycologist specialising in medical trauma.
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