Please Help little Zoey

Our family were given the heart wrenching news that no parents or loved ones want to hear, Zoey has been diagnosed with Spinal Muscular Atrophy Type 3. SMA is a Neuromuscular condition all forms continue to deteriorate as the disease progresses. Her little body will stop sending messages to her muscles and continue to decline. This will result in her only getting weaker and sadly she will lose her ability to walk, dance and much more.

Specialists have told her parents because she lives in NZ with no access to treatments Zoey will end up in a wheelchair, they are scared, angry and feeling all the emotions you would expect from any parent facing this heartbreaking news about their baby girl. Zoey is only two, she is a happy bubbly young girl who loves dancing Zoey is already showing rapid signs of muscle weakness! This is devastating to watch as her ability to do all those things she's loves to do decrease

They live in a 1 bedroom sleepout last winter Zoey got sick multiple times resulting in breathing difficulties needing hospital attention, oxygen, prendisolone and inhalers. Respiratory health is crucial for those with SMA as their immune system is weak they are at high risk of pneumonia and they cannot regulate their own body temperature.

Our family are desperate to build a small fully insulated home at the back of my parents property so they can be close to family for support and to keep her healthy, safe, warm and has space to navigate her wheelchair in the future.