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I have terminal cancer and 4 children. Very little time left now. I have so much I must do before I go. Please ease our journey.

  • Seeking help to fund private treatment…the chemo will kill me if the cancer doesn’t.

      28 October 2025

    My chemo started 3 weeks ago and has had the desired effect. I have chemo cycles for the next 16 weeks then monitoring every 3 months. It may be possible to restart chemo when the cancer surges again, and maybe again if I can stay strong enough…but its a race that can’t be won.

    There are some very exciting integrative treatments that are meeting with success but they are, or can be, extremely expensive. I must attempt some these treatments after much research. To not do so is simply to wait for the end. I have two little boys who need a daddy, grandchildren to meet, my wife to love decades longer. Please help keep the hope of a cure alive for us. Your value of your support is impossible to overstate. Many thanks to you all. Live and love well!

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  • Thank you all you wonderful people who’ve recently given!

      17 October 2025

    So, I had my first chemo session on Tuesday at 8:30 am and it went well i.e. no nausea but I had a terrible terrible night. Terrible tummy pain in the end. I went back to hospital and ambulance and spent the last three days between Auckland and North Shore Hospitals. Very happily, the pain was not caused by the chemo but rather buy a dietary glitch which I have learnt how to control and avoid. What you eat how you eat when you eat is incredibly important when you’re fighting cancer but what complicates it for me is that I’ve had bowel surgery and my bowels are still recovering so instead of being able to eat heartily I have to be very careful and it’s easy to make mistakes.

    I’m going to be discharged today and hope to spend the next few weeks getting stronger and starting to enjoy myself a little more as the chemo works at killing the cancer, making movement much easier for me. In the meantime, it’s hard yards but if I can get enough food in me, the right food, and get good sleep I’ll get through it in the meantime. Thanks again and love you to all.

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  • Helena, Aloísio and Raphael

      14 October 2025

    Helena is extraordinary. So strong in every way though I know what she’s experiencing inside. She’s an incredible Mum and NEVER lets the boys see her broken. She needs to share this though so we are learning how to navigate these very raw, very complex feelings through our little boys’ daily life.

    Aloísio knows something is up…but still playing with endless imagination and full love for his little brother. Raphael is just 2 so his comprehension of things is naturally limited but he too senses something askew…he’s very gentle with my tummy and wants to spend time close to me as opposed to finding something dangerous to climb up or fall into!

    Very importantly, Helena is working a full week from home and the boys are thriving at their daycare Precious Years. And that’s what this is really all about. We are getting through the business of life without great disruption and worry…and it is ALL THANKS TO YOU!

    Love, Us 🙏❤️

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  • Time to thank everybody again, in particular of course those of you have donated since my last thank you!

      14 October 2025

    So…huge thanks and gratitude to all who have donated in the past week or two. Rio de Janeiro has been incredible (muito obrigado família) ❤️🥲🥳

    In terms of an update, I had my first chemo session at 8a.m. today, 2.5hrs, and it went very smoothly. No nausea, dizziness etc but it could come later. Hoping I have the good fortune to escape that crap.

    And life goes on, some days are better than others, but now I’m actually receiving medication I can expect to feel better as the days go by. That’s a wonderful thing to look forward to because some nights the pain is beyond belief.

    But I read stories and cuddle my little men, their sisters come down to play with them and we have some magical family times.

    Looking into ways I can enhance my treatment such as fasting, ketosis, ivermectin etc. The latest view is that cancer is a metabolic disorder…disrupting its ability to feed by various means is the same as killing it outright with chemo. It’s a very complex thing so I’m learning learning learning and planning to discuss additional compatible therapies with my oncologists.

    Going to visit my parents in Rotorua this weekend…hope all of you have a fun weekend too!

    Until then please take care and know that every single one of you has done a wonderful thing for us…the easing of stress around immediate finances is a massive relief for us, allowing us to enjoy life more freely day to day and lift our heads up, feel the warmth of the sun on our faces. Well maybe not today! 🙏❤️

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  • Thank you all who have given since my last thanks!

      7 October 2025

    Thank you so very much.

    My first appointment with the oncologist was today…and it wasn’t good news at all. Suffice to say that I’ll be lucky to see Christmas ‘26. My chemo starts next Tuesday so we hope it’s effective and once it stops in 6 months that my cancer remains subdued. If it comes back to life again soon after stopping chemo my options narrow considerably.

    It is unbearably sad. But I have to somehow banish negativity, stay strong in every way and believe I can get it under control.

    Right now I’m making lists of things I need to get done around the house to make things easier for my family. Some fences, painting, I have a steel shed to assemble and site. I hope I have the strength to do these things and I could certainly do with the distraction of some satisfying projects. That said I may need a little help over a weekend or two so maybe a few of you could get stuck in with me for a free lunch, beers and a hug 😉.

    Finally a huge thanks again to all of you and please try to spread my givealittle as much as you can!

    Oh yeah, one more thing. I went to get done dental work done urgently today (before chemo starts it’s important to get these sorts of things taken care of). I had to tell her about my meds, discuss options re extraction/root canal in the context of ongoing chemo. Total cost was $790-00. She charged us $190-00. I was in tears. It’s hard not to cry right now when people are so kind. Happy story! Thank you wonderful dentists at 106 Carlton Gore Rd.

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  • Hullo all!

      23 September 2025

    I’m sure you understand what a massive job it would be to reply to everybody individually. Every part of me screams that it’s what I must do but it would take me hours! Please know that every donation is seen and appreciated deeply and all your kind words are read and read again. So thank you so very much every single one of you for what you have done for us. It means so very, very much. I believe that all donors receive these updates automatically so I can take comfort in the fact that you see my messages of gratitude. So much human love out there…you are all very special.

    Right now I’m at home swimming in chicken soup and acclimatising to the fully-involved rolling chaos that is two pre-schoolers 😂. I wouldn’t have it any other way. Reading stories till they fall asleep, then watching them when they do. Magical, magical moments.

    I’m getting stronger, sleep comes easier and deeper…still hurting where they carved me up, but healing very well. Trying walk a solid 30 mins every day and put those 25kg I lost back in the right places!

    Once again, you have moved us deeply with your kindness. Thank you again and again.

    Kia kaha,

    Simon

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  • We are absolutely overwhelmed by the kindness, generosity and loving spirit of everybody who has helped us.

      21 September 2025

    Hi all, I’m at home today (came home yesterday on my birthday!) with my beautiful, brave, extraordinary wife and four gorgeous children Sophia (21), Stella (19), Aloísio (4) and Raphael (2). Helena’s mother, a saint sincerely, has been here the last 2 weeks to support us (especially Helena) with the boys. She leaves next Monday for Rio de Janeiro where she specialises in, can you believe it, oncology 🥲. She has made huge sacrifices to be here and I can’t possibly tell you how grateful I am for the support and love she has shown.

    I am sore from the operation, slit from belly-button to sternum, but healing well, stronger everyday. I’ve lost 25kg, 1/4 of my body weight…but heading into summer so lucky me I’ll be looking good on the beach 😂.

    Now it’s about regaining (some) of that weight, building my strength both physically and mentally. I think when I’m able to move without pain, play around with my little boys and start to do the normal things of life I’ll feel ‘normal’ again. The truth is however that I have left one world forever to live in another. But I am truly blessed in so many ways. To have the love a woman like Helena is a miracle that never loses its wonder.

    Finally please understand that it’s a huge job to reply to and acknowledge every donor so I hope these updates reach you. It’s hard not to cry when I see how you have all rallied around for us. Very big feelings indeed!

    So thank everyone of you, so many of you unknown to me. You are beautiful. Thank you

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  • Surgery almost healed, going home soon?

      19 September 2025

    I want to say thank you to all the wonderful, compassionate people who have helped my family in this terrible, terrible time.

    I’m trying to reply individually but it’s hard work and I get very tired. Please know that’ll I’ll thank you personally eventually!

    Enjoy this beautiful day…maybe you forget sometimes how precious every day is. It’s normal but try not to! Love, Simon

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  • Surgery!

      9 September 2025

    The team at North Shore Hospital are amazing. Very caring, kind and extremely professional. Had a successful surgery yesterday to reroute the passage of food, bypassing the occlusion. First concrete step towards solids again so I’m very excited about that. Gently, gently, steady as she goes. I think it’s going to be wet scrambled eggs with salt, pepper and parsley on a slice of Vogels…with juice of some sort yet to be decided. Hooray!

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  • PET SCAN today and my feeding tube too!

      5 September 2025

    So we start this fight with some reconnaissance of my innards and delivering supplies to the front. Here goes everybody. Fingers crossed please.

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